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Christines Blog (Archive Blogs 4)

Wednesday 16th December 2009 At 9:25pm two years ago today my only son Andrew died of vCJD It was not a peaceful death as he fought to stay with his family; Andrews dying was painful and noisy. Four days and nights I held my sons frail body as he tried desperately to breathe, the sound of his rasping, rattling desperation to get air into his lungs filled my bedroom .The room that had become my 24 year old sons prison. Andrewss body shook the bed for hours which turned into days as he tried to force air into his body..why would a 24 year old young man want to die and leave this world..with all its wonders and possibilities? Those images as well as the terrible months leading up to his death when my Andrew suffered fear, pain, and total disability are burned on my heart. I will never forgive or stop pursuing those responsible for the unlawful killing of my innocent only son. I buried my son four days before Christmas I remain totally heartbroken for my beautiful boy who should be living loving and experiencing life with his family, partner and friends. FOR ANDREW. Stop all the clocks, cut off the telephone, Prevent the dog from barking with a juicy bone, Silence the pianos and with muffled drum Bring out the coffin, let the mourners come. Let aeroplanes circle moaning overhead Scribbling on the sky the message HE IS DEAD, Put crepe bows round the white necks of the public doves,
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Let the traffic policemen wear black cotton gloves. He was my North, My South, My East and West, My working week and my Sunday rest, My noon, my midnight, my talk, my song: I thought that love would last for ever: I was wrong. The stars are not wanted now: put away every one; Pack up the moon and dismantle the sun; Pour away the ocean and sweep up any wood. For nothing now can ever come to any good. W H Auden
Friday 11t h December 2009 On Tuesday 8 th December I attended the open day at the Prion Unit at UCL, Queen Square, London. This is an annual event for families and friends of all people who have been affected by CJD. Its a day in which Professor John Collinge and his team give lectures, one to ones, tours of the laboratories and information about latest news and research into prion diseases. Its also a time for families from all over the UK to meet and share experiences and support one another. I attended with a friend and it was difficult to go back to the place where my Andrew had his tonsil biopsy and was diagnosed with vCJD. However it was also a day when I also met families who are currently nursing victims suffering with CJD. It seems that areas of research regarding treatments to stop prion disease before it reaches the brain are moving forward rapidly. Once again the information that was shared regarding risk of vCJD via blood/ blood products/tissues/organs/ surgical instruments highlighted the ticking health time bomb which BSE has left the UK and global public. With the introduction of blood screening for vCJD it would pave the way to test for all strains of CJD and numerous other neurological diseases. I am hopeful with the groundswell of public and media support here in the UK that a blood screening test for vCJD will be routine in the near future.

Tuesday 8t h December 2009 Check out this link below to see the video of Dean and Sarah Burrell with their two children, Chloe and Charlie aged 4years old and just 18 months old.
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Dean became ill with vCJD this August. Another young life and family devastated by the UK man made manufactured disease .vCJD. Since my Andrew died just 2 years ago I have spoken to numerous mums and family members who have or are nursing a loved one with vCJD. We are still not being told the truth about how many have and will die of vCJD. When are the people responsible for this crime the killing of innocent people going to be accountable and punished? It seems if you are a government official, minister or member of the establishment you are above the law....and can condone and be the architects of a lethal pathogen that has unlawfully killed and disabled thousands of people and still remain free and financially sound......those men and women I name on this website are warned that I will continue to pursue them with my dying breath.......until they are accountable and criminally responsible for killing my son Here is a photo of me and Andrew on the day he was clinically diagnosed with vCJD at Southampton Hospital. John Gummer said to me off camera BE CAREFUL WHAT YOU SAY ABOUT ME.LIBEL Well my retort to John Gummer all those responsible for my sons death and for the deaths and disablement of all victims of vCJD THE GREATER THE TRUTH THE GREATER THE LIBEL Mary Wollenstonecraft TRUTH IS POWERFUL AND IT PREVAILS www.it v.com/anglia/diagnosedwithcjd06692 Sat urday 5t h December 2009 Below is the EDM ( early day motion ) that my MP Mike Hancock has put before parliament check out the link and below is the full transcript. I like to thank the other MPs who have signed the EDM for their support. http://edmi.parliament.uk/EDMi/EDMDetails.aspx?EDMID=39636&SESSION=903 VARIANT CREUTZFELDT- JAKOB DISEASE Hancock, Mike That this House notes the 171 deaths and confirmed cases of variant Creutz feldt- Jakob Disease (vCJD) and the four currently surviving victims of the disease in the UK, including four through blood transfusion compared with three in total in the US; congratulates and welcomes the work of Christine Lord, following the tragic death of her son Andy from vCJD at the age of 24, in establishing a website, www.justiceforandy.com, and producing a BBC South documentary Who Killed My Son; asks the BBC to screen the documentary nationwide; further asks the Government to commission further research to establish common factors, such as school catering and vaccines among vCJD victims in South Hampshire as well as elsewhere in the country including the cases of two young men from Eastleigh near Southampton who died of vCJD within weeks of each other, and who had both received polio vaccines from the same batch; further notes the Written Answer from the Minister of State for Health on 11 March 2008, giving a vCJD sub- clinical prevalence estimate of up to one in 1,400 of the population; and further asks that the Government completes its evaluation of screening for prions in blood supply and other possible measures to protect the blood supply, in light of the conclusions reported in the 15th annual report of the National Creutz feldt- Jakob Disease Surveillance Unit, that blood transfusion is the most effective transmission route for vCJD.
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EDM 18.11.2009

Wednesday 2nd December 2009 I have investigated the scandal of BSE and its lethal pathogen vCJD for over 2 years. Despite bullying, intimidation, disrespect and threats I have uncovered a catalogue of lies, corruption and cover- ups at the highest levels of government and society. This has been perpetuated and continued by various government departments, their officials and members of the establishment, to protect those named on this website and to hide the fact that all victims past, present and those unfortunately to come were unlawfully infected and killed. One of the many false reassurances the UK public are being given by the Department of Health and the Government is the numbers that have died and will die of vCJD. Other journalists and campaigners have written about this corruption and manipulation of facts and figures. As far back as 2000 Kevin Toolis in an article for The Guardian newspapers reported on the cluster of cases of vCJD victims in Queinborough, Leicestershire, (Epidemic in Waiting, September 22 nd Page 22): Mysteriously the National CJD Surveillance Unit charged with tracking the human form of BSE at first denied the clusters existence, but then reversed its position after local newspapers uncovered the existence of a fourth then fifth victim. I have discovered within 24 miles of our home in Southsea at least 8 young people have died of vCJD and many more victims of Sporadic CJD (the naturally occurring form of the disease so rare it only affects one in a million?) This according to the CJD unit is not a cluster of cases? And there is no connection with any of the victims? I found that two vCJD victims went to the same school, two had polio vaccines from the same clinic, batch and at the same time, and that many of these victims had connections with a particular area. There are clusters of cases all over the UK .but this is strongly denied by the Government and CJD unit. I have recently changed the home page and its contents to reflect the evidence I have gathered and the facts that I have discovered.the official government statistics are around 171 UK victims who have died of vCJD. (See below revised homepage text) These are the official government statistics in reality hundreds of innocent people have been killed by vCJD , thousands of individuals many of them children under 16 have been affected by vCJD and tens of thousands of us may be silently carrying the disease. The cover-up continues Sat urday 28t h November 2009 Another young person has been diagnosed with vCJD; Dean Burrell from West Norfolk is just twenty five and newly married with a four year old daughter and 18month old son. My thoughts and love are with Dean and his wife Sarah; check out the link to a news feature about this young couple who are facing the illness with amaz ing strength with the support of their family and friends. This young family not only face the prospect of months of pain and anguish they are already in financial difficulties.. Whilst John Gummer MPwho allowed and condoned the use of BSE material in the food/medicine chain
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Whose constituency is in the area, resides in a manor house and lives in the lap of luxury.is this justice? http://www.lynnnews.co.uk/news/Help- send- Hunstanton- CJD- dad.5864830.jp

Thursday 26t h November 2009 Check out this link from BBC news regarding blood and vCJD...and the need to filter and screen all individuals who may be silently carrying vCJD. http://news.bbc.co.uk/1/hi/health/8380065.stm Tuesday 24 t h November 2009 Below is a link to a newspaper article about Edward Peduz ie who died in October aged 26 of vCJD, near Calne, Wiltshire, UK. Edward was one of the longest survivors of vCJD as he had been treated with pentosan, a controversial drug which seems to slow down the process of the disease. Edward was diagnosed with vCJD in 2003. Unfortunately although Pentosan slows down the progression of vCJD in some victims it does not repair or reverse any brain damage. This is why blood screening is so important because if we can diagnosis the disease before symptoms appear then treatments can be given at the earliest stages. I met Edward and his father Paul this summer and it was a privilege to meet such a devoted father and spend a precious day with Edward, whose cheeky smile and gentle manner will remain with me. My thoughts and prayers are with Paul and Edwardss family at this devastating time. May your god go with you http://www.gaz etteandherald.co.uk/news/towns/calneheadlines/4747769.Calne_father_s_suspicion_falls_on_school_meals/?ref=rss Sunday 22nd November 2009 Check out this youtube feature about my Andrew, vaccines and blood, kindly put together by one of the many supporters of the 'justice for andy campaign' thanks Chris for all your help and support my Andrew would be astounded that so many people care I am just so appreciative of the growing support and members of the public that keep login on and coming forward with information and help, thanks to you all....... http://www.youtube.com/watch?v=J_alan6FtAg Wednesday 18t h November 2009 Check out this article about blood products and vCJD. The facts it present regarding the safety of blood and vaccines is worrying. On every blood bag in the UK there is a disclaimer stating that all blood products given are not free of vCJD, if you are about to go into hospital for an operation I suggest you check out what blood products may be used in your procedure.
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http://generalmedicine.suite101.com/article.cfm/the_dark_side_of_blood Attached to this blog is a photo of Andrew, me and Emma taken by my neighbour for his art project on families in 2003. I have only seen this and the 44 other photos yesterday. I am so proud of my children and when I see photos of Andrew so well, handsome and with a brain so sharp he ran two live studios and even sorted out all my tax returns, I cant believe what happened to my son within a short while after these photos were taken. I like to thank my ex neighbour Richard for sending these photos to me I will treasure them as they capture my son at his best and my little family of three complete and happy!

Sat urday 14 t h November 2009 Check out this months The Mother' magaz ine Page 14 a feature titled How vaccines, beef burgers and blood donation caused vCJD. Its author Joanna Karpasea Jones interviewed me about Andrews last days and the campaign for justice. www.themothermagaz ine.co.uk Joanna writes Transmission of disease by injection is a more proven method of transfer and certainly more risky than eating food, which does not go directly into the bloodstream. The article explores at length the BCG vaccines which were sourced from TB infected cattle my Andrew had this vaccine aged 14 in 1997. Also polio vaccines which were recalled in 2000 after being sourced from bovine fetal serum. Other vaccines and their ingredients are also implicated. I weep in the knowledge that vaccines and medicines I thought would protect my son...may well have been the source of his horrific death....and that Scientists and the government were aware of the risks as far back as the 1980s and did nothing......... continuing to allow these lethal cocktail of vaccines to be used to inject our most vulnerable including my young son...... Friday 13t h November 2009 Below is a link to BBC1s inside out programme 'who killed my son' which I helped to produce and film about my Andrews last days and my fight for justice here in the UK.
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This link it to website and blog which has translated the programme into Chinese, so that the campaigns friends and supporters from the east and Chinese speaking can have access to the documentary. Andrews tragic and avoidable death as all victims of vCJD have touched many millions of peoples hearts across the globe, as they realise that governments have put commercial gain, political careers before the global publics health and well being. The kindness of strangers who have come forward with information, support and affection has been overwhelming, with emails and hits on the website continuing, I thank you all for your continuing support and help in the fight for justice and the truth. (photo of me and Andrew on the day of his diagnosis) Christine x Thursday 5t h November 2009 Please click on this link below and read the horrifying and tragic death of a young man called Alan who died of vCJD. I am in touch with Alans family and my thoughts are with his parents, young widow and Alans family and friends. Alans mum describes his death in horrific detail, not one young person who has died of this man made manufactured disease has died peacefully or without fear or pain. Those terrible images are burnt on the hearts and souls of those left behind.forever. http://edinburghnew s.scotsman. com/features/ CJD- rips- you- to- bits. 5781086.jp Tuesday 3rd November 2009 Here is a link to one of the many articles featured in the media regarding 'justice for andy' 'blood safety campaign'. http://www.wave105.com/Article.asp?id=1563138&spid=25629 Monday 2nd November 2009 Below is part of the statement I gave to SABTO, Royal Horticultural Conference Centre, Central London., GMT 215pm 27 th October 2009. I also include some of the leaflets I gave to every delegate and SABTO committee member. Christine Lord. UK

The subject of the meeting was Donor selection/ Donor def erral.
Discrimination and prejudice is not only morally wrong its illegal. Donor selection and exclusion should never be about fear of difference but about protecting human health. I welcome the input from the many organisations and individuals here today especially those who are excluded from giving blood. I believe SABTOS meeting is well timed as its urgent that we not only look AT WHO IS EXCLUDED FROM DONATING BLOOD AND REASONS WHY.BUT ALSO THOSE THAT ABLE TO GIVE BLOOD AND
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SHOULD BE EXCLUDED. With millions of hits on the justice for Andy blood safety campaign website , we know the public is demanding that the government should be putting the publics safety firstand that instead of looking the other way they concentrate on a real threat to public health and safetyVCJD And that donor selection encompasses any donor who could be silently carrying the disease. I lost my only son Andrew Black to vCJD just over 20 months ago; he went from a healthy talented radio producer to a shell at just 24 years old. Within six months he became blind, deaf, quadriplegic, unable to talk, swallow or recognise his family..thats the reality of dying of CJD. The easiest way to transmit the rogue prions that cause VCJD is through blood, intravenous or medicinal routes..18 UK blood donors have gone on to die of vCJD and their blood has killed individuals and also put thousands of others at risk of developing vCJD. The mother of one of these blood donors told me John donated his blood for many years before he died of vCJD, who knows how many people he may have infected? His recipients were never tracedall blood should be screened for vCJD. Experts predict that one in a thousand of the UK population may be silently carrying vCJD. Current safeguards are not working as the one of the latest victims of vCJD in the UK is dying after receiving blood products for an operation just a few years ago. There is no donor selection for vCJD even though there is a test available that is ten times more sensitive than the current HIV test.and its being used successfully in Europe. The Department of Health in the UK denies that there is a current VALIDATED TEST because they are withholding crucial human blood samples from vCJD victimsso that validation cannot take place. These blood samples that are being held hostage include those of my late sons I gave permission for his blood samples to be use for treatments, cures and research instead they are being withheld by the Department of Health. Lives are being put at risk and the Department of Health is not protecting the UK publics health. Whilst healthy and screened members of society including minority groups represented here today are being denied the right to give blood..other individuals including many of us in this room can give blood routinely..but could be passing vCJD onwards to infect and kill perhaps hundreds of people through our donated blood. I urge everyone here today to read the leaflets we have provided and join us in the Campaign for blood safety. I urge SABTO to pass on these warnings to the Government and Department of Health Lives can be saved if we screened all donated blood for vCJDwe can prevent further deaths through blood and we can protect future generations.
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20 months ago my only son died of vCJD, next week, next month, next year .it could be your son, daughter or loved one.or it could even be you..

LEAFLET
BLOOD SAFETY CAMPAIGN Today and tomorrow we can save lives Please join us in the campaign to screen all donated blood for vCJD, a lethal ticking health time bomb that concerns every member of the UK public. There are robust and highly sensitive screening tests available to remove any individual who could pass vCJD onwards through the blood transfusion service. But the Department of Health is stalling their implementation. Current safety measures are not working: ONE OF THE LATEST VICTIMS OF VCJD HAD A BLOOD TRANSFUSION JUST A FEW YEARS AGO. VCJD has not gone away and continues to kill on a regular basis We can prevent further deaths and protect future generations by screening all individuals that donate blood. PLEASE JOIN THE CAMPAIGN TO PROTECT THE BRITISH PUBLIC FROM A SECONDARY WAVE OF VICTIMS. The most effective way to transmit the rogue prions that causes vCJD (the human form of mad cows disease) to a human being is intravenous. Thousands of individuals across the UK and globally have been affected and killed by CJD due to injectibles/intravenous or medicinal routes. 18 UK BLOOD DONORS AFTER GIVING BLOOD FOR MANY YEARS HAVE GONE ON TO DIE OF VCJD. FACT: Recipients of those 18 blood donors have also died of vCJD. FACT: Hundreds of recipients of those contaminated blood products live daily with the fact that at any time they may develop vCJD. Many of these were young children. FACT: At present blood is lecudepleted which removes white cells, a model tested on animals at best 40 percent effective and clearly not working as a middle aged woman is currently dying of vCJD after receiving blood. FACT: Experts are becoming increasingly concerned about members of the population who could silently carry vCJD never develop the disease but have the potential to pass it onwards through blood, tissues, organs and medical procedures. FACT: Blood donors can give blood three times a year, over 120 times during a lifetime. This could put thousands of people at risk of developing vCJD, until screening is implemented. FACT: Any individual who has lived or worked in the UK since 1980 is no longer able to donate their blood in any other country in the world. As the whole of the UK population is considered at risk of passing vCJD onwards through our donated blood. FACT: In May 2008 Professor John Collinge World expert on vCJD told BBC1
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PROBABLY ONE IN A THOUSAND OF THE UK POPULATION COULD BE CARRYING VCJD FACT: Every year about 2.4 million blood donors give blood in the UK. Thousands of UK blood donors could be carrying vCJD. (Statement SABTO committee member October 2008) 7 FACT: BLOOD PRODUCTS DONATED BY 3 PEOPLE WHO WENT ON TO DIE OF VCJD WERE SOLD TO ELEVEN COUNTRIES. These products include routine childhood vaccines from 1996 to 2000. Most recipients have never been traced. FACT: Childhood vaccines are processed using bovine and human blood products. FACT: EXPERTS BELIEVE THE INCUBATION PERIOD FOR VCJD CAN BE UPWARDS OF 50 YEARS. FACT: A victim has recently died of vCJD from the most common genotype MV , 52 percent of the UK population are MV so the majority of blood donors may come from this group. FACT: Women in Australia have died of CJD due to hormone injectibles contaminated with the rogue prions that cause CJD. Some recipients have never been traced. FACT: Individuals have died of vCJD after receiving corneal transplant and invasive medical procedures. FACT: Hundreds of haemophiliacs/people with bleeding disorders have been informed they are at risk of developing vCJD. because their injectible medicine was sourced from blood donors that went on to die of vCJD. This year an elderly haemophiliac who died of unrelated causes was found to be incubating vCJD in his spleen. FACT: 2,000 children in the UK and many abroad were injected with growth hormones that put them at risk of developing CJD many of these youngsters in adulthood have since died horrifically. The growth hormones were harvested from cadavers riddled with cjd. FACT; Three mothers in the terminal stages of vCJD have given birth. These mothers have sadly died, one of the children a girl is severely brain damaged with all the symptoms of vCJD whilst the other two children remain healthy. All women and patients who used the delivery suites/theatres after these tragic mothers now live with being 'at risk of developing vCJD' The rogue prions that cause vCJD cannot be sterilised, eradicated or burnt by normal hospital procedures. As the rogue prions are not alive so cant be killed and remain active for years. PLEASE JOIN THE BLOOD SCREENING SAFETY CAMPAIGN www.justiceforandy.com Thursday 29t h Oct ober 2009 Below is one of the links to the media coverage yesterday that 'justice for andy' and the 'blood safety campaign' generated at the SABTO meeting in central London. The meeting was about donor selection and donor referral and there were many minority groups represented. I made many contacts yesterday and am hopeful that new alliances will be formed so that we become a larger and more cohesive campaign . I was cheered that the group supporting the gay community took Andrews story to their heart and chanted outside the Royal Horticulture Conference
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Centre that ' all should be screened for CJD'. I made a ten minute statement to SABTO and the gathered delegates and experts, I will be posting this statement on to my blog in due course. I was pleased that Professor Marc Turner member of SABTO informed me that before Christmas the companies that have developed screening tests for vCJD will be allowed access to human samples from vCJD victims. I am hopeful that this is the case, but cautious as these promises and words in the past have proved empty and just a means to fob me off and have been false reassurances. There is no reason why screening of donated blood should not be in place today...and every day that passes thousands of people are put at risk of developing vCJD. 7,000 units of donated blood and blood products are used every day in the UK ...thats 7,000 plus individuals who could go on to develop vCJD through intravenous or medicinal routes..... 7,000 plus people whose lives are being put at risk....... SABTO and the government have been warned.....that the longer they keep delaying the more they are contributing to a secondary wave of victims of vCJD....... http://www.portsmouth.co.uk/newshome/Campaigning- mother39s- blood- screen- demand.5764990.jp Monday 26t h Oct ober 2009

PRESS RELEASE GRIEVING PARENTS DEMAND BLOOD SCREENING TEST FOR VCJD Tuesday 27 th October 2009: SABTO Public Meeting, 2-4pm Greycoat Street, SW1P 2QD Family members of victims of Vcjd will be gathering in London on Tuesday 27th October to demand that all donated blood is screened for the human form of mad cows disease. The Blood Safety Campaign will be represented by past, present and current individuals affected by the lethal brain wasting disease, at SABTOS public meeting in central London. The meeting is expected to have over a hundred delegates including dozens of world experts, scientists, medics and concerned organisations. Grieving parents, siblings, grandchildren, wives and husbands will be attending the public meeting to share their fears and concerns as to why the UK government are delaying implementation of blood screening tests for vCJD.
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SABTO (Safety of Blood Tissues and Organs) will be meeting at the Royal Horticultural Conference Centre in London from 2pm. SABTO is an advisory committee of medical, scientific and health experts who advise the government on safety issues regarding blood, cells, tissues, transplantation and transfusion Joining the heartbroken families will be haemophiliacs and individuals who are at risk of developing vCJD due to contaminated blood sourced from blood donors that went on to die of vCJD, with many other concerned experts and organisations voicing their fears. Co ordinators of the campaign Christine Lord (who lost her only son Andrew Black aged 24 to vCJD in 2007) and Lisa Farrant (22) from Fordingbriodge, Hampshire who lost her grandmother to cjd (her gran was a lifelong blood donor) are hoping to push for the implementation of blood screening tests for Vcjd. 18 BLOOD DONORS HAVE DIED OF VCJD infecting many people and putting hundreds at risk of developing the deadly neurological disease. VCJD originated from BSE infected cattle which were allowed to enter the food and medicine chain during the 1980s and 1990s. Christine Lord (52) from Portsmouth said Vcjd has not gone away and continues to kill people on a regular basis. Current safety measures to protect our blood transfusion supply are not working as the one of the latest victims of Vcjd is dying after receiving a blood transfusion just a few years ago. During a blood donors lifetime they can give blood over 120 times which has the potential to infect thousands of individuals She added There are robust and sensitive screening tests available which have already been used in Europe, these tests will protect future generations and prevent further deaths and will keep UK blood supply safe and free of vCJD, yet the Department of Health are stalling, meanwhile lives will be lost needlessly With world experts predicting (Professor John Collinge UCL ) that One in a thousand of the Uk population may be carrying vCJD its a significant concern for many medical experts that a secondary wave of vCJD victims will be created through our blood supply. Professor Marc Turner (SABTO committee member) said at the last meeting The numbers at risk are clear donated blood is a significant risk and concern to SABTO. Pete and Eve Buckland from Brighton lost their son Mark aged 32 to vCJD, after he received a contaminated blood transfusion, Pete said If a screening test had been available when Mark had his operation he would still be alive and well today. Andrew March aged 33 from Kensington in London is a haemophiliac who has received countless contaminated blood products from donors that went on to die of vCJD, he said:
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Screening all donated blood should be implemented immediately, I live daily with the knowledge that any time I could go on to develop and die of vcjd. As a haemophiliac I was given injectible medicine to keep me safe instead it has devastated my life. If all blood donors are screened for Vcjd it will mean that no other person will die of Vcjd through contaminated blood.
Thursday 22nd Oct ober 2009

This morning at 2am another victim of vCJD in the UK died aged just 25 years old.
Another innocent life taken, another future stolen, my condolences, thoughts and love are with this young mans family at this terrible tragic time. WHAT WILL SURVIVE OF US IS LOVE (Phillip Larkin) Tuesday 20t h Oct ober 2009 Next week on Tuesday 27 th October I and other families who have lost a loved one to vCJD will be attending the public meeting of SABTO. The committee of Safety of Blood, Tissue and Organs who advises the government on blood safety issues including vCJD. This years meeting is taking place at the Royal Horticultural Conference Centre, Victoria, London SW1P 2DQ at 2pm. As well as myself and other grieving families, haemophiliacs and other individuals who have been exposed to blood products from donors that went on to die of vCJD will also be represented. Thousands of haemophiliacs and people with blood clotting difficulties were exposed to blood products that put them at risk of developing vCJD in the future. These peoples lives (many of them were young children) have been devastated. I will be there representing my Andrew all victims of vCJD and also supporting the safety and health of the UK public. As a mum who has lost a beloved son to vCJD my only agenda is responsibility, honesty, transparency and the fact we need to keep our blood supply safe and free of vCJD. This years meeting concentrates on donor selection, where prospective donors are turned down for a variety of reasons, including age, sexual history and medical concerns. At present there is no donor selection for vCJD, despite blood screening tests being available in Europe. This means that more lives will be lost due to people contracting vCJD through blood products in the UK. I will be voicing these concerns and many more at the SABTO meeting next week and will keep you posted regarding the outcome of the meeting. Tuesday 13t h Oct ober 2009 The most effective way to transmit the rogue prions that causes vCJD to a human is intravenous. Experiments where scientists have tried to infect monkeys by feeding them orally with CJD infected material have proved either impossible or very difficult. What we do know is that people have and will continue to die of vCJD through intravenous/medical routes, until blood screening has been
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implemented. What we also know is the BSE material should have never been allowed into the food and medicine chain in the first placelet alone for over a decadewe now face a secondary wave of victims through blood and medical procedures.. Donated blood here in the UK is not safe or free from vCJD. Below are the facts regarding routes of infection and how vCJD has been introduced into people through intravenous/medicinal methods.. FACT: Foetus calves serum was used to make vaccines throughout BSE. These calves foetuses were taken from cattle sick and dying of BSE. Yet for years this deadly material was used to create and produce the vaccines that were supposed to protect and care for our most vulnerable. FACT: Two young men died of vCJD within weeks of each other in the Eastleigh area of Southampton. These young men had received polio vaccinations many years earlier at the same clinic, from the same batch, and had the vaccine roughly the same time. FACT: Individuals have died of vCJD through receiving contaminated blood. (See my blog about Mark Buckland who died of vCJD after receiving a blood transfusion during an operation). FACT: 18 blood donors have gone on to die of vCJD, hundreds of recipients of these donors blood products have been informed they are at risk (of developing vCJD) and thousands are walking around oblivious that they are at risk. FACT: Hundreds of haemophiliacs and people with bleeding disorders have been informed they are at risk of developing vCJD, because their injectible medicine was sourced from blood donors that went on to die of vCJD. This year an elderly haemophiliac who died of unrelated causes was found to be incubating vCJD in his spleen. FACT: 2,000 children in the UK and many abroad were injected with growth hormones that put them at risk of developing CJD many of these youngsters in adulthood have since died of CJD. FACT: Individuals have died of vCJD after receiving organs such as corneal grafts. FACT: My Andrew had raised levels of mercury in his blood when he was dying. Andrew never had any fillings/invasive dentistry or operations. Mercury was/is used in the manufacture of vaccines. FACT: Strict vegetarians and Hindus have died of vCJD. Jorawar Gill aged 20 died of vCJD in 2003 aged just 20 years old, he was a Hindu. The family said We want to know how Jorawar could have died of vCJD when he was born into a vegetarian household Jorawar had eaten beef on a handful of occasions and during his formative years when experts say it was most likely he would have been infected, Jorawar consumed vegetable dishes. He did have routine infant and childhood vaccines and also an operation when he was young. English, Scottish, Welsh, Irish, Chinese, Japanese, Americans, Germans, Italians, French, Australians, Canadians and many more nationalities have been killed by vCJD with hundreds of families affected across the globe. Strict vegetarians and many others who had particular cultural, religious or stringent food and dietary choices, some excluding all types of beef products have died of vCJD.
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The infected beef burger theory starts to look a bit shaky and too simplistic for my liking. As my Andrews consultant at Southampton Hospital said to me A stray burger did not cause this. A scientist in the USA Joe Gibbs from Maryland conducted experiments to test the theory that BSE could be transmitted to humans orally He said the first experiments we did was to put stomach tubes into the animals (chimps) as you would for a gastric analysis and through those tubes we introduced copious amounts of highly infectious known to be transmissible CJD and nothing ever happened to those animals. Experimentally these scientists could not reproduce the route of transmission through eating Gibbs continued with his experiments and found that Squirrel Monkeys eventually became infected with vCJD through handling and then eating huge amounts of infected material but only after the monkeys had played with and handled the infected meat for an extended period of time. His conclusion that cuts in the hands, legs and other parts of the animals body, rubbing their eyes produced what is known as self inoculation. The infected material was self inoculated into the blood stream of the squirrel monkeys and thats how they became infected. My Andrew never handled any meat as a child and I know as a fastidious young man and adult he never would have touched raw meat of any kind. Andrew never had any operations or invasive dentistry the only intravenous medical procedure he ever had were his childhood vaccines. So did my Andrew develop vCJD through eating some infected beef? He hardly ate beef and didnt eat beef products from the age of 6. Or was it through the vaccines I allowed him to have during infancy and childhood to protect, nurture and keep him safe? The terrible irony of the above statement makes me weep. Friday 9t h Oct ober 2009 Since the launch of this website many families have contacted me who are questioning the diagnosis of family members who have apparently died of dementia or sporadic CJD. Sporadic or classic CJD is a naturally occurring form of the disease which is spontaneous and happens out of the blue. Before BSE sporadic CJD only affected one in a million people generally over 60. I have been told by experts that figure is now one in 33,000, and cases are becoming much younger. Since BSE was allowed into the food/medicine chain cases of sporadic CJD and dementia have risen dramatically. Experts do not think this is coincidence. Below is a link to a story about a School Dinner Lady who died the same year as my Andrew, her family and granddaughter Lisa Farrant are convinced Audrey Cook died of vCJD and are still battling the authorities for this acknowledgement. Audrey Cook was also a blood donor and to date none of the recipients of her blood have been traced by the authorities. Lisa and her family back me in the campaign to have all donated blood screened for vCJD. See the story below which echoes many many families across the UK and globally who are fighting the authorities for recognition
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regarding what killed their loved one and who are also supporting me in my fight for justice and the truth. http://www.bournemouthecho.co.uk/search/4582280.Blood_screening_plea__as_donor_dies_of_vCJD/ Tuesday 6t h Oct ober 2009 Check out the link below for more information about the Amorfix screening test that has been developed by a Canadian company. This test will be able to screen and remove any blood donor who has the potential to pass on vCJD. The UK government are delaying this test? Why? Whilst the UK government delay lives will be lost, 2.4 million blood donors give blood every year in the UK, 18 blood donors have gone on to die of vCJD. How many blood donors may be silently carrying the disease? Experts believe that vCJD can have an incubation period of upwards of 50 years And that some people may never develop the disease but silently carry vCJD with the ability to pass the infection onwards through blood and medical procedureswhich means one blood donor could infect hundreds of people over a lifetime of giving blood Isnt it about time the Government and Department of Health put the British Publics health and well being first and foremost .. Latest news about Amorfix http://biotuesday.ca/2009/10/06/amorfix- nearing- finish- line- with- vcjd- test Sat urday 3rd Oct ober 2009 There is now a facebook group justice for Andy see the link below. This forum is open to anyone who wants to discuss, share and talk about vCJD. So far concerned members of the public, family members and friends of victims of vCJD have contributed, please log on and offer your thoughts and support and pass the link onwards to your family, colleagues and friends. "Justice for Andy" and the link is: http://www.facebook.com/group.php?gid=19964110428 On the facebook causes page there is also a link to vcjd http://apps.facebook.com/causes/337781/57078495?m=6d54c0aa

"One in a t housand of t he UK populat ion could be carrying vCJD." (Professor John Collinge,March 2008)
To wat ch t he document ary please use t his link
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