#CPHC Twitter Chat February 11, 2014 The Autism Society GailZahtz See what an incredible week we have!

e! RT @RoadWeveShared: 1 for week http://t.co/Hd0yigY1d3 1 for @AlexSensory http://t.co/w3agP6ziSQ #CPHC Introductions: GailZahtz It's intro time- as a community we really care who YOU are. So tell us about yourself- what you do, why you're here, coffee or tea? #CPHC nxtstop1 Hi everyone,Bernadette Keefe,physician, checking in from NorthCarolina~interested in all aspects of optimal health/wellness~esp aging. #CPHC GailZahtz Hello! @nxtstop1 One of my favorite physicians on twitter!! And one of my other sides @RoadWeveShared Then @SPINN_PHR #CPHC already hot! RoadWeveShared Hello everyone! Stephanie here- parent advocate for adults who have #Downsyndrome #CPHC (Coffee / diet coke!) SPINN_PHR Joining the #CPHC chat! Jeremy here from #SPINNhealth. I prefer coffee @GailZahtz. Interested in discussing #autism today! AutismSociety Hello to all the #CPHC chatters today! We are the national office for the Autism Society here, located in #bethesda #md #dc area! @GailZahtz GailZahtz Welcome @AutismSociety we're honored you could make this- with all of your affiliates- how many members do you represent? #CPHC Sandyhubbard We're honored to have with us @AutismSociety which is the natl office for Autism Society, located in #bethesda #md #dc area! #CPHC AutismSociety Our "official" Twitter voice is also known as @fleuredeflorida. Worked in #autism svcs #disabilities #advocacy for over 5 years. #CPHC... JimCanto Greetings all. Jim Canto here from http://t.co/6jruV1vJrV .. a.k.a.; @medxcentral #cphc GailZahtz Ha- I just pulled @JimCanto who had said he couldn't join us- lovely! Tell us more about medxcentral Jim! #CPHC JimCanto @GailZahtz Shhhh... I'm not really here. ;-) #cphc JimCanto Thanks, @GailZahtz ... for now, it's a simple healthcare social network for those in healthcare and those who need them. #cphc JimCanto ok.. punched out for lunch.. now I can participate guilt free. #cphc CHopeMurray I like both coffee in the morning, tea in the afternoon and batter's choice in the evening - ever eager to participate/contribute #cphc GailZahtz I am SO glad you came today @CHopeMurray There is quite a bit I had hoped you'd be here for today! Count on news by end of #CPHC lol CHopeMurray @GailZahtz and I must apologize for my extended absences - will try to attend more regularly in next few months #cphc GailZahtz You have been missed @CHopeMurray but I already forget as you're back! #CPHC Pfanderson Patricia here for #CPHC mom of ASD teen, sister to ASD adult Pfanderson Triple chatting #cphc #asd #canarychat #teenfbsafety while making storify from this Ams #umpedsgr

GailZahtz I am so happy you are joining @pfanderson meet @AutismSociety They are very collaborative- you'll see partners #CPHC CHopeMurray how many limbs do you have? RT @pfanderson Triple chatting #cphc #asd #canarychat #teenfbsafety while making storify from this Ams #umpedsgr fleuredeflorida .@CHopeMurray extras would be nice, eh? cc: @GailZahtz @sandyhubbard #CPHC CHopeMurray I can only raise 2 hands in agreement RT @fleuredeflorida .@CHopeMurray extras would be nice, eh? cc: @GailZahtz @sandyhubbard #CPHC GailZahtz FYI @fleuredeflorida our @CHopeMurray was CTO of @RedCross and only knows everyone ;-) #advocate #community @sandyhubbard #CPHC NYCPatient @GailZahtz Coffee :-) Volunteer extensively w/ kids, many on the spectrum. Particularly interested in resources for NVLDs. #CPHC GailZahtz Glad you're here @NYCPatient Yes, I'm all about coffee! And today we're all about giving voice to patients/consumers and caregivers! #CPHC Jenningshealth Hi all, Kate at Jennings here. Hope everyone's Tuesday is going well! #cphc GailZahtz The fab @jenningshealth meet @AutismSociety and after today we should talk- you'll see why ;-)) #CPHC jenningshealth Looking forward to it! RT @GailZahtz: The fab @jenningshealth meet @AutismSociety and after today we should talk- you'll see why ;-)) #CPHC NatriceR #cphc sorry running late will try and catch up shortly WeCan4Health Checking in a bit late, but just enough time to stop in today. Hi everyone! #CPHC GailZahtz I see the great collaborative author @WeCan4Health You'll love all the true patient/consumer centered programs of @AutismSociety #CPHC WeCan4Health @GailZahtz You are so kind :) @AutismSociety #CPHC ASAAlbanyNY Autism Society of the Greater Capital Region, NY here #CPHC GailZahtz Hello @ASAAlbanyNY great to have you! Can you tell us more about your specific goals and programs as an affiliate? #CPHC NMAutismSociety @GailZahtz @AutismSociety greetings from Sarah Baca/New Mexico here. #CPHC

GailZahtz For later reading @nxtstop1 and others here is my front page article in @KBBconnect on hidden accessibility http://t.co/7ALcjfHVrl #CPHC nxtstop1 @GailZahtz @KBBconnect Thanks so much, Gail! #CPHC Sandyhubbard As folks are drifting into chat, please intro yourselves. Are we all followng each other? #communityrocks in #CPHC Sandyhubbard Starting now >#CPHC > we're talking partnerships & strategy. I encourage non-profits & health-related organizations to chime in! Please RT Sandyhubbard If you're just arriving at #CPHC, please introduce yourself. Be sure to follow @GailZahtz who will be talking w/ our guests during the hour. Sandyhubbard For those of you just joining #CPHC - please follow @AutismSociety and other experts in today's chat and feel free to comment. :)

Sandyhubbard We are privileged to be able to offer resources for the #autism community and to introduce you to people who can answer questions. #CPHC GailZahtz Meanwhile, we are always an open community so everyone please ask, answer, keep talking! #CPHC GailZahtz So what do you think @sandyhubbard seems @AutismSociety is right up the #CPHC beliefs of collaboration... @pfanderson @CHopeMurray GailZahtz Imagine @nxtstop1 #CPHC families of communities working with @AutismSociety partners, affiliates and more- how much both gain? #CPHC GailZahtz I'm looking forward tomorrow @AutismSociety to hearing more about @AutismMN steps of hope program on live radio! Though please share #CPHC Autism Society: GailZahtz Would you like to start telling us about yourselves @AutismSociety @fleuredeflorida ? We're excited to learn from #autism to #partners #CPHC AutismSociety .@GailZahtz We have a network of over 150 affiliates, been around since 1965, we advocate for the 2M people impacted by #autism in US. #CPHC AutismSociety .@GailZahtz More than 120k members and more connected through those affiliate networks, like @autismMN #CPHC #autism #nonprofit GailZahtz Wow mT @AutismSociety: More than 120k members and more connected through those affiliate networks, like @autismMN #CPHC #autism #nonprofit GailZahtz Speaking of @AutismSociety Can you share some links and summaries of your programs, explain missions and goals and partnerships? #CPHC GailZahtz As we wait to hear more from @AutismSociety Here are all their partners- collaborative, and shared values with #CPHC http://t.co/PtDTDXyNCI AutismSociety .@GailZahtz Sure! We have programs for #autism #advocacy #awareness #support & #resources such as Autism Source http://t.co/Dm2ph2VgOf #CPHC GailZahtz How are you unique in the world of #autism @AutismSociety and tell us more please about Autism Source ;-) #CPHC AutismSociety .@GailZahtz We offer nationwide pgms through affiliates such as #firstresponder #training, #faith initiatives http://t.co/eEgFWo7SgM #CPHC GailZahtz I find affiliate program fascinating- I was talking with @autismmn and they said you have shared goals but give independence? Explain #CPHC AutismSociety .@GailZahtz We have common traits with #disabilities partners like @TheArcUS @EasterSeals @tashtweet @aapd serving #PWD #autism #CPHC GailZahtz <3 mT @AutismSociety We have common traits with #disabilities partners eg @TheArcUS @EasterSeals @tashtweet @aapd serving #PWD #autism #CPHC AutismSociety We are 1 of oldest grassroots #autism orgs. advocating for better lives for all impacted by #autism #ASD #PWD #families #schools #SPED #CPHC AutismSociety .@gailzahtz: Affiliates share core #autism #services and #awareness activities, but operate independent w/in local communities. #CPHC ASAAlbanyNY @GailZahtz Goals = make communities better, lives fuller. Programs = rec, I&R, support, fun, learning, partnerships #CPHC

nxtstop1 @ASAAlbanyNY @GailZahtz That sounds wonderful~ drawing in the community as a whole /all families to learn and enjoy good times too~ #CPHC JimCanto Interesting re; affiliates. Must investigate more @AutismSociety .. my gf is studying to be #SPED teacher. Oppty? cc: @gailzahtz #cphc AutismSociety Plz do! MT @JimCanto: Interesting re; affiliates. Must investigate @AutismSociety .. my gf is studying to be #SPED teacher. #cphc JimCanto @fleuredeflorida Just followed you. That's a good start. :-) #cphc GailZahtz @AutismSociety What is #SPED I thought I knew all short names lol #CPHC JimCanto @GailZahtz @AutismSociety Special Education #cphc GailZahtz @JimCanto @AutismSociety thanks! #SPED = special education, interface daily, didn't know acronym #CPHC GailZahtz It is GREAT to see you @AutismMN You are doing some amazing work here in my "home" state- share about it? #CPHC @AutismSociety GailZahtz The partnerships also mean that diagnosis is not only focus @RoadWeveShared @AutismSociety @TheArcUS @EasterSeals @TASHtweet @AAPD #CPHC Jenningshealth Offers more complete care MT @GailZahtz: Partnerships mean that diagnosis isn't only focus @RoadWeveShared @AutismSociety @TheArcUS... #CPHC GailZahtz Agree @jenningshealth we at #CPHC and our family of networks have been all about collaboration @RoadWeveShared @AutismSociety @TheArcUS AutismSociety .@GailZahtz First Responder is natl model, affiliates have flexibility to develop local #partnerships. #safety #autism #CPHC GailZahtz How do the affiliates and partners help with local and national community? @ASAAlbanyNY @AutismSociety @autismmn #CPHC AutismSociety .@GailZahtz We look at lifetime of opportunities/potential and how can we support? #PWD #autism #services #disabilities #CPHC GailZahtz Love this! mT @AutismSociety: We look at lifetime of opportunities/potential; how can we support? #PWD #autism #services #disabilities #CPHC GailZahtz Okay as we're getting towards the half-way point- @AutismSociety can you tell us more about your partnerships and how they help all? #CPHC AutismSociety .@GailZahtz Affiliates/partners provide local connections to #autism community, #selfadvocates, #families, #SPED professionals #CPHC nxtstop1 @GailZahtz @AutismSociety Perfect role, just what individuals/families/communities need~The go to place for info/support~ #CPHC GailZahtz And could be global online? RT @AutismSociety: Affiliates/partners provide local connections to #autism #selfadvocates, #families, #CPHC AutismMN @GailZahtz founded in 1971, we're the oldest nonprofit in MN focused on educ & advocacy for people w/ #autism from birth to retirement #cphc GailZahtz We are TRHILLED to have you @NMAutismSociety As I ask of @AutismSociety Please answer, comment too! YOU matter here at #CPHC @autismMN AutismSociety .@NMAutismSociety Yes, feel free to chime in! #CPHC cc: @autismMN @GailZahtz GailZahtz TY There is only one of me typing but hoping all our special guests will talk! #CPHC @AutismSociety @NMAutismSociety @autismMN

AutismSociety .@GailZahtz Sure! Major partnership with @AMCTheaters on #sensoryfriendly activities for #autism, see here: http://t.co/NFczbxQ2mL #CPHC nxtstop1 @AutismSociety @GailZahtz @AMCTheaters That's neat! #CPHC GailZahtz Can you tell us about the #sensoryfriendly partnership and how it works? @AutismSociety @AMCTheaters #CPHC @AlexSensory AutismSociety .@GailZahtz @AMCTheaters partners with local affiliates to offer #sensoryfriendly showings of #movies for #autism families and adults #CPHC AutismSociety .@GailZahtz @AMCTheaters model for other #sensoryfriendly activities in #film #community #culture #recreation for #autism families #CPHC AutismSociety Oh, quick note, @AMCTheatres is spelled the old fashioned way, y'all! #CPHC @GailZahtz #partners #autism #sensoryfriendly AutismSociety .@GailZahtz #CPHC We also work with @TheArcUS @TASHtweet @EasterSeals on #autism interagency council for #publicpolicy #sped #advocacy #IDEA GailZahtz So @AutismSociety it sounds like you have partnerships that can bring many different views and help to you, affiliates like @autismm #CPHC AutismSociety .@GailZahtz also these activities give way to ideas like @AutismMN's Steps of Hope mall walk #sensoryfriendly http://t.co/UJnq8AvenI #CPHC AutismSociety .@GailZahtz PS, here's a list of national #partnerships for #autism http://t.co/xiEF3bkq5D #CPHC Sandyhubbard It's wonderful to see the affiliates of @AutismSociety at our chat. Thank you for attending and sharing your expertise! #CPHC GailZahtz So how can partners help?We have networks of communities, media and events-I'm seeing lots of opportunities-thoughts? #CPHC @AutismSociety AutismSociety .@GailZahtz Partners/communities can engage with us via Twitter, FB: http://t.co/GJSYD4a2lz #autism #CPHC #partnerships #autismmatters GailZahtz Well we definitely have a very large social media contingency- almost all in #CPHC are leaders within Social Media @AutismSociety fleuredeflorida .@GailZahtz YAY! Makes for one happy #PR lady! #CPHC sandyhubbard It's important that advocates band together to gain momentum & access to platforms for their voices to be heard. #CPHC is one such platform! AutismMN Other newer progs include emergency preparedness training for families & first responders - http://t.co/EyTyDv997i #CPHC Pfanderson @AutismMN This is SO important! Need much more help with this #cphc Sandyhubbard Excellent RT @AutismMN Programs include emergency preparedness training for families & first responders - http://t.co/6v5NuoUfDI #CPHC AutismMN We are especially proud of our Emergency Preparedness 5-Point Scale App - it's free: http://t.co/jRt7Dkq2hb #CPHC GailZahtz I love this emergency preparedness- we put it on our home page for the week @sandyhubbard @AutismMN #CPHC That affects everyone AutismMN @RoadWeveShared Agreed about EP. We get very positive responses from law enforcement, and hope to make it a mandatory training in MN #CPHC AutismMN Untrained assistants for people w/ ASD results in frustration for everyone: client, worker, family, agency. #CPHC

AutismSociety .@GailZahtz Also there is a HUGE amount of activity around Nat'l #Autism Awareness Month, #NAAM2014 #autismmatters. #CPHC AutismSociety .@GailZahtz We're putting out #autism tip sheets, tookits & other content and activity during April 2014 for #NAAM2014 @autismMN #CPHC GailZahtz Could we help with activities during April? @AutismSociety @autismMN #CPHC AutismSociety We would LOVE that! RT @GailZahtz: Could we help with activities during April? @AutismSociety @AutismMN #CPHC AutismSociety .@GailZahtz #NAAM2014 is for all impacted by #autism, want to hear why #autismmatters to you and your communities in April. Join us! #CPHC GailZahtz Seems like a partnership could work! RT @AutismSociety: We would LOVE that! mT Could we help during April? @AutismSociety @AutismMN #CPHC AutismSociety .@GailZahtz We are interested in working with #SPED, #autism #service providers, etc. during #NAAM2014 #autism #awareness #CPHC AutismSociety @GailZahtz Also connecting to local affiliates great way to get involved with #autism #advocacy: http://t.co/Dm2ph2VgOf #CPHC GailZahtz With all the energy and expertise in #CPHC folks- think we could join the amazing partners, lend a hand for all?! @sandyhubbard @CHopeMurray AutismMN @GailZahtz Our annual statewide autism conf is 4/30-5/3 this year with multiple tracks for families, educators & MH professionals #CPHC GailZahtz Putting on calendar! Let me know if u need speakers, etc mT @AutismMN:Our annual autism conf is 4/30-5/3 this year w/ multiple tracks #CPHC Fleuredeflorida huge opps here too RT @AutismMN: @GailZahtz Our statewide autism conf is 4/30-5/3 with tracks for families, educators & MH leaders #CPHC AutismMN @GailZahtz we're putting the finishing touches on the conf lineup. Grateful to have received many responses to call for papers #CPHC AutismMN MN Autism Conf. has opportunities for sponsors, exhibitors and advertisers to support: http://t.co/nakf78h7Vw #CPHC AutismSociety #CPHC chatters, learn more about National Autism Awareness Month #NAAM2014 here: http://t.co/XEQzo4M8Ax #autismmatters #PWD @GailZahtz GailZahtz We represent every state and most countries with our members so many could help locally too @fleuredeflorida @AutismMN #CPHC AutismSociety .@GailZahtz Great to hear! We are trying to "move the needle" locally and nationally for #autism #awareness during April 2014. #CPHC GailZahtz Great! RT @AutismSociety: Great to hear! We are trying to "move the needle" locally & nationally for #autism #awareness during April #CPHC AutismMN Another important program launched in 2013 was ASD certrfication for direct service providers. #CPHC GailZahtz interesting RT @AutismMN: Another important program launched in 2013 was ASD certrfication for direct service providers. #CPHC AutismMN Too many DSPs are put in the position of being the right hand of a person w/ ASD, without any knowledge of the condition. #CPHC AutismSociety So critical RT @AutismMN: Another important program launched in 2013 was ASD certs for direct service providers. #CPHC

GailZahtz You'll get support for this from group members- talked about before mT @AutismMN: Untrained assistants 4 ASD results in frustration #CPHC AutismSociety #CPHC @GailZahtz MT @autismmn: Great responses from DSP agencies like TSE, Autism Works recognizing value of cert - http://t.co/UzCJ9pLN4v AutismMN We're also looking fwd to the upcoming start of the MN legislative session with some important initiatives for people imacted by ASD #CPHC AutismMN Great interest based social skills partnerships started recently too: @ComoZoo, @mnzoo, Leonardos Basement & Eastman Nature Ctr #CPHC

Statistics: SPINN_PHR Interesting #CNN article discussing #autism. Some really alarming numbers here. #CPHC @AutismSociety SPINN_PHR Forgot link to #CNN article...OOPS. http://t.co/3ZoxxK1EKr @AutismSociety #CPHC #autism AutismSociety Prevalence is 1 in 88! RT @SPINN_PHR: Interesting #CNN article discussing #autism. Some really alarming numbers here. #CPHC @AutismSociety SPINN_PHR The United States is facing almost $90 billion annually in costs for autism @AutismSociety WOW! #CPHC nxtstop1 @SPINN_PHR @AutismSociety Is much of this from the educational cost or maintenance later? #CPHC SPINN_PHR @nxtstop1 research, insurance costs and non-covered expenses, Medicaid waivers , educational spending, housing, transportation etc. #CPHC nxtstop1 @SPINN_PHR Thanks big list of expenditures there! #CPHC fleuredeflorida We think that's low #. RT @spinn_phr: The United States is facing almost $90 billion annually in costs for autism @AutismSociety WOW! #CPHC SPINN_PHR @fleuredeflorida @AutismSociety How low? #CPHC SPINN_PHR @nxtstop1 All of this info comes from @AutismSociety http://t.co/upkg8T0TF1 #CPHC AutismSociety .@SPINN_PHR Individual cost per year is too low. Avg. for adult w/ #autism w/ #residential supports more like 100-200k. #CPHC nxtstop1 @SPINN_PHR @AutismSociety Thanks for link~ Time for real info- super! #CPHC nxtstop1 @fleuredeflorida @SPINN_PHR Probably depends where on the spectrum~ high functioning equals job -better situation. #CPHC fleuredeflorida .@nxtstop1 Yes, it def. varies! Also this study may have only factored out-ofpocket for individuals, not state/fed costs. #CPHC #autism GailZahtz Oh- which study talk did I miss? #CPHC @fleuredeflorida @nxtstop1 CHopeMurray Prohibitive makes college seem cheap RT @fleuredeflorida .@SPINN_PHR Avg for adult w/ #autism w/ #residential support closer 100-200k #CPHC nxtstop1 @CHopeMurray @fleuredeflorida @SPINN_PHR Once need for residential/custodial support> costs astronomical~ #CPHC GailZahtz One year home before residential saves $80,000 !! Will share more from #IBSVegas @nxtstop1 @CHopeMurray @fleuredeflorida @SPINN_PHR #CPHC SPINN_PHR @AutismSociety That is big change in numbers. Are there resources for families with lower incomes dealing with #autism? #CPHC

WeCan4Health @AutismSociety Seems like a short time ago when Bill Cosby spoke abt #Autism w/Larry King on CNN w/stat of 1 in 150 @GailZahtz #CPHC

College: Pfanderson @CHopeMurray @fleuredeflorida @SPINN_PHR For ASD kid in college here, support is ~ $6K extra per term, above regular costs #cphc CHopeMurray ouch! RT @pfanderson @fleuredeflorida @SPINN_PHR For ASD kid in college here, support is ~ $6K extra per term, above regular costs #cphc SPINN_PHR @pfanderson So that's would add to the 60k per year I spent on my education. Not to mention thousands in additional costs! #CPHC nxtstop1 UNC Chapel Hill ~home to the late and great Eric Schopler who pioneered the Teach Autism Program~ Probably many of you are aware? #CPHC CHopeMurray @pfanderson @fleureforida guessing that students with ASD are less than 3% of student population. Colleges should be able to cover? #cphc nxtstop1 @CHopeMurray @pfanderson @fleureforida Hate to say, colleges don't voluntarily cover anything extra~ #CPHC pfanderson @SPINN_PHR That, or you spend many MANY hours providing the support yourself, if you can. #cphc pfanderson @CHopeMurray If you require colleges to cover costs, will they reduce admissions? #cphc CHopeMurray @nxtstop1 @pfanderson @fleureforida true - most funds tend to go to prestige projects, but what could be more noble that ASD support? #cphc SPINN_PHR @pfanderson Seems like there should be more help from the #government for funding along with extra resources for students with #autism #CPHC Pfanderson @CHopeMurray @nxtstop1 since when is academic noble in act as well as in aspiration? OTOH, it does happen sometimes :) But $$ tight #cphc CHopeMurray @pfanderson we need a redirection of academia, less profit oriented + more educative + nurturing of those we will depend on in future #cphc nxtstop1 @CHopeMurray @pfanderson Often Public Universities have this as their mission, that's why Im big supporter of them~ Inclusionary. #CPHC pfanderson @nxtstop1 @CHopeMurray I have a workshop centered around this idea #cphc SPINN_PHR @nxtstop1 @CHopeMurray @pfanderson What about private universities? I would be curious to see what #BU has. #CPHC nxtstop1 @SPINN_PHR @CHopeMurray @pfanderson A brilliant aspergers/hi functioning w/math /computer skills they would take~my guess-others no #CPHC SPINN_PHR @nxtstop1 I would probably have to agree... #CPHC Pfanderson @nxtstop1 @SPINN_PHR @CHopeMurray Ie., like football scholarships. Need special skills, can't be "middle of the road" skills #cphc nxtstop1 @pfanderson @SPINN_PHR @CHopeMurray Yup~ all very competitive. They're after the max in their student body~ #CPHC nxtstop1 @SPINN_PHR @CHopeMurray @pfanderson Worth asking BU. #CPHC GailZahtz what is worth asking BU? #CPHC @nxtstop1 @SPINN_PHR @CHopeMurray @pfanderson

nxtstop1 @GailZahtz @SPINN_PHR @CHopeMurray @pfanderson Whether they would partially fund attendance and support for autism students~ #CPHC GailZahtz Scholarships is a wonderful idea! We have a lot of universities and hospitals in #CPHC @nxtstop1 @SPINN_PHR @CHopeMurray @pfanderson CHopeMurray @nxtstop1 @GailZahtz @SPINN_PHR @pfanderson agree - we could ask them publicly (ie through social chat) - no harm in asking after all #CPHC nxtstop1 @CHopeMurray @GailZahtz @SPINN_PHR @pfanderson Never harm asking~Actually the only way,you never know. Be nice to have student in mind #CPHC pfanderson @NYCPatient @SPINN_PHR @nxtstop1 @CHopeMurray There isn't money! Budgets tight. They try, but really, it takes a community to support #cphc SPINN_PHR @pfanderson You would think they would have some extra money, especially with the costs of schools these days. #CPHC SPINN_PHR @pfanderson This seems like a great idea. Why hasn't this been done???? #CPHC #Autism GailZahtz If we partnered with @autismsociety and affiliates @nxtstop1 @CHopeMurray @SPINN_PHR @pfanderson They could help with teaching needs #CPHC SPINN_PHR @GailZahtz @AutismSociety @nxtstop1 @CHopeMurray @pfanderson Great idea! #CPHC CHopeMurray @NYCPatient @SPINN_PHR @nxtstop1 @pfanderson just as we're doing, highlight good ones & invite the ignorant (not knowing) to respond #CPHC NYCPatient @SPINN_PHR @nxtstop1 @CHopeMurray @pfanderson Few priv univsprovide real resources for any type of special needs, yet alone autism #CPHC nxtstop1 @NYCPatient @SPINN_PHR @CHopeMurray @pfanderson Yes, read major discussions re physical disability probs & lack mental health support #CPHC NYCPatient @SPINN_PHR @nxtstop1 @CHopeMurray @pfanderson Pace and Marshall have reputable programs for serving students w/ autism. #CPHC NYCPatient @SPINN_PHR @pfanderson 100% agree. Marshall's program is a great model, including partnerships with several NPOs & community orgs. #CPHC CHopeMurray @pfanderson @nxtstop1 we need a Noble prize instead of a Nobel prize: what is the use of wisdom if we don't seek to attain + use it? #CPHC WeCan4Health @CHopeMurray That's a great thought! @pfanderson @nxtstop1 #CPHC CHopeMurray The emerging economy appears to be distributed + collaborative, need to ensure all can participate + contribute, fragmentation fails #cphc GailZahtz Yes mT @CHopeMurray: The emerging economy appears to be distributed, collaborative, need to ensure all can participate, contribute, #cphc NYCPatient @pfanderson @SPINN_PHR @nxtstop1 @CHopeMurray It does. Colleges r req'd by law under ADA. The biggest need I see is getting DX. #CPHC (1/2) Pfanderson @NYCPatient @SPINN_PHR @nxtstop1 @CHopeMurray Many not Dx until in college! Especially college athletes #cphc

nxtstop1 @NYCPatient @pfanderson @NYCPatient @SPINN_PHR @CHopeMurray That's really unfortunate~always earlier the better~ #CPHC CHopeMurray +1 must be proactive RT @nxtstop1: @NYCPatient @pfanderson @NYCPatient @SPINN_PHR That's really unfortunate~always earlier the better~ #CPHC NYCPatient @pfanderson @SPINN_PHR @nxtstop1 @CHopeMurray Dx is key! The middle of college is disservice not just to the student, but to society. #CPHC nxtstop1 @NYCPatient @pfanderson @SPINN_PHR @CHopeMurray Well,right,finally learning:neglect of individuals any facet ie health>hurts society. #CPHC Pfanderson @SPINN_PHR Perhaps the assumption that "They" should support is where we go wrong; need communities of support #cphc Both? SPINN_PHR @pfanderson Great point. #CPHC What can we do to get schools and communities on board? Pfanderson @SPINN_PHR It's a culture of "ask the government what they can do for you" Back to 60s & Kennedy "ask what YOU can do" #cphc Pfanderson @NYCPatient @SPINN_PHR @nxtstop1 @CHopeMurray complicated. Diff reqs for college vs high school; diff needs, transition, diff skills #cphc CHopeMurray @pfanderson @NYCPatient @SPINN_PHR @nxtstop1 a possible project for Groundcrew: app for finding contributors + helping people in need #CPHC CHopeMurray sadly Groundcrew app is no longer active, great idea that was luckily picked up by @IPvoices http://t.co/g9xw1PmqkE #cphc nxtstop1 @NYCPatient @AutismMN UNC Chapel Hill's Teach Autism Program is legendary~started by Eric Schopler in the 70's~ Educates and treats #CPHC

Alex Sensory: GailZahtz Everyone meet @AlexSensory we had an INCREDIBLE radio show last night on #sensory I was taking notes-he's going to have #CPHC channel! nxtstop1 @GailZahtz @AlexSensory Gail can you give us little overview :) re the radio show #CPHC GailZahtz I shall give you radio show and link to this week and I tweeted and @nxtstop1 feel free to ask @AlexSensory directly! #CPHC GailZahtz @AlexSensory @AutismSociety @atomikclimbing don't forget to add #CPHC to all tweets- can you resend last one so all can see? TY! nxtstop1 @GailZahtz @AlexSensory Thanks so much and @AlexSensory if you could enlighten us with info from radio show~ #CPHC GailZahtz Yes @nxtstop1 Please @AlexSensory do add in #CPHC and talk about all you shared! GailZahtz @RoadWeveShared Can you share the fab page you've created on this week's programming? and @ me so I can share ;-) TY! #CPHC RoadWeveShared 1 for week http://t.co/J3Pq9LQTGt 1 for @AlexSensory http://t.co/SxcR9N3Uwh @GailZahtz #CPHC Sandyhubbard @AlexSensory Hi Alex - I am Sandy, co-moderator of #CPHC chat and an ardent for access and design for all abilities and ages. nxtstop1 @sandyhubbard @AlexSensory Yey Sandy, great goal/focus~ #CPHC

GailZahtz Meanwhile @AlexSensory I hope you are talking and answering about #sensory of interest to all! #CPHC AlexSensory #SPD Self Regulation activity #CPHC http://t.co/CahUrL8gcO AlexSensory @AutismSociety #SPD #Autism #CPHC #RAIRSYMPOSIUM #Therapists welcome Feb 2223rd #Minnesota http://t.co/x6IRBmoKTd http://t.co/sWc3eUOBRr AlexSensory Most #autism children have low muscle tone try this home activity for a therapeutic activity #SPD #SI #CPHC http://t.co/QC7n9yteXf AlexSensory Before #CPHC had a #OT tx w/ 26 yr old male w/ #autism that crawled late & for only 2 wks old just crawled 10 yrds x8 reps #SPD #therapy AlexSensory Glad to have connected with all of you @AutismSociety #CPHC @GailZahtz http://t.co/2u1ZAI8Yxb AutismSociety us too! Thanks! RT @AlexSensory: Glad to have connected with all of you @AutismSociety #CPHC @GailZahtz http://t.co/B33llJbS3B Calendar of events: GailZahtz We should make a calendar- or borrow one that's made on what each month is in health awareness @pfanderson @RoadWeveShared #CPHC Pfanderson @GailZahtz @RoadWeveShared Here you go http://t.co/Hw8c9QM3Br #health #observances #cphc Jenningshealth .@GailZahtz @pfanderson @RoadWeveShared Here's a list of national health observances by month http://t.co/tu0wTzW2Q8 #cphc Pfanderson @jenningshealth @GailZahtz @RoadWeveShared Same on. My favorite :) #cphc GailZahtz @pfanderson @jenningshealth @RoadWeveShared We'll need to get that up! Can go on calendar area? #CPHC Pfanderson @GailZahtz @jenningshealth @RoadWeveShared It's from the government, open to public. Absolutely #cphc Pfanderson @GailZahtz @jenningshealth @RoadWeveShared I think there is a subscribable version #cphc

Partnership: GailZahtz I see the partnership idea getting Favorited by many in our group @AutismSociety ;-) And we could help affiliates and April, etc #CPHC GailZahtz Well @AutismSociety what do you think? Feeling an official partnership before the hour is up ;-) Always about making it happen at #CPHC AutismSociety Let's do it! MT @GailZahtz: Well @AutismSociety what do you think? Feeling an official partnership before the hour is up ;-) #CPHC GailZahtz Done! RT @AutismSociety: Let's do it! MT @AutismSociety what do you think? Feeling an official partnership before the hour is up ;-) #CPHC GailZahtz No-one can say not much comes out of an hour at #CPHC so we can say we're honored to announce a partnership with @AutismSociety

GailZahtz We just announced @CreativityMoves a national partnership with @AutismSociety including supporting affiliates #CPHC CreativityMoves @GailZahtz Looks like it was a great chat! #CPHC Jenningshealth Exciting! RT @GailZahtz: We just announced @CreativityMoves a national partnership with @AutismSociety including supporting affiliates #CPHC GailZahtz Yes @CreativityMoves we will have an announcement of the partnership by next week and a by topic chat in next days #CPHC CreativityMoves @GailZahtz Can't wait to hear more and talk tonight! Reading through the stream right now :) #CPHC Sandyhubbard You heard it here first, folks> #CPHC and @GailZahtz announces a national partnership with @AutismSociety and their affiliates! GailZahtz !! RT @sandyhubbard: You heard it here first, folks> #CPHC announces a national partnership with @AutismSociety and their affiliates! GailZahtz I truly didn't know when I woke this morning that we'd be joining ranks with @AutismSociety & partners like @EasterSeals & affiliates! #CPHC Fleuredeflorida Twitter magic! MT @GailZahtz: Didn't know when I woke this AM we'd be joining w. @AutismSociety & partners @EasterSeals & affiliates! #CPHC GailZahtz Yes! RT @fleuredeflorida: Twitter magic! MT Didn't know when I woke we'd be joining @AutismSociety partners @EasterSeals affiliates! #CPHC Exits: JimCanto Time 4 me to step out. Thx for having me today. I welcome and value your connections. Here's to the future!! - Jim a.k.a. @medxcentral #cphc Sandyhubbard @JimCanto @medxcentral Thank you, Jim, for making time for #CPHC today. See you soon :) WeCan4Health Have to get going...but thanks to all! Worth a look for those who may have missed this chat as well! #CPHC GailZahtz @WeCan4Health Thanks for coming! Keep up to date as we announce more on the @AutismSociety partnership with their many partners #CPHC Sandyhubbard @WeCan4Health Thank you, Bob, for lending your voice today! #CPHC NatriceR #cphc @GailZahtz @sandyhubbard sorry I missed most of chat, glad to see #awareness #autism as topic, good afternoon all! SPINN_PHR Thanks everyone for the wonderful #CPHC chat about #Autism! Learned so much today! Tons of great ideas and lots of input from participants nxtstop1 A wonderful afternoon!~ Very informative/many refs re Autism and the tremendous outreach efforts.Thanks so much Gail,Sandy and to All! #CPHC GailZahtz Thank you! We're due for a chat @nxtstop1 to meet collaborative shared goals and values!! #CPHC AutismSociety Thanks for chatting today at #CPHC! RT @jenningshealth: Thanks for following! @AutismSociety Fleuredeflorida Whew! Now I start combing through the #CPHC feed to find folks! I'm the lady behind @AutismSociety, so don't be surprised if I add you! :)

Sandyhubbard Not only are there resources today in #CPHC, there are ideas for engagement for any non-profit or hc agency. Great chat! Sandyhubbard Many #CPHC chatters work during the day but will review the stream later. These messages and resources will extend reach over the week. GailZahtz TY for the point @sandyhubbard Yes @AutismSociety we are much bigger than only those who can make a week of chat #CPHC Sandyhubbard Education, Awareness and Advocacy are what we excel in here at #CPHC :) @GailZahtz @AutismSociety GailZahtz Yes! RT @fleuredeflorida: RT @sandyhubbard: Education, Awareness and Advocacy are what we excel in here at #CPHC :) @AutismSociety GailZahtz So all- looks like a highly productive chat! We'll share information as @AutismSociety & us have lots to work out- please give input! #CPHC AutismSociety Thanks! MT @gailzahtz: So all- highly productive chat! We'll share information as @AutismSociety & us work out- please give input! #CPHC Fleuredeflorida Thanks! MT @gailzahtz: So all- highly productive chat! We'll share information as @AutismSociety & us work out- please give input! #CPHC GailZahtz As we grow our networks of hosts, community leaders & events ( LOTS to share all) please let us know what works for YOU the #CPHC community Fleuredeflorida #health #PR MT @gailzahtz: As we grow networks of hosts, community leaders & events, plz let us know what works for YOU the #CPHC community GailZahtz Looking forward to more this week! We have @CreativityMoves tonight, @autismmn Wed, and hopefully a family member Thursday #CPHC GailZahtz Thank you to our many FAB guests including @AutismSociety @autismMN @AlexSensory @CreativityMoves @NMAutismSociety @ASAAlbanyNY #CPHC AutismSociety Thank you! MT @gailzahtz: Thank you to FAB guests @AutismSociety @AutismMN @AlexSensory @CreativityMoves @NMAutismSociety @ASAAlbanyNY #CPHC AutismMN We're always looking for community partners to expand resources for folks w/ ASD, and welcome all who want to discuss. Thanks! #CPHC GailZahtz I am here, and we are ready to support the (cold) but friendly MN contingency! #CPHC @AutismMN Sandyhubbard Thank you to all who participated in #CPHC and learned about advocacy and education from @AutismSociety and affiliates. Sandyhubbard be sure to follow @GailZahtz for chat updates, info about her radio show and guests, web resources for our #CPHC community, and much more! GailZahtz that's a lot to follow! #grateful for you @sandyhubbard and so many who help us! Follow http://t.co/N52YkLvH1W by @RoadWeveShared #CPHC AutismSociety Thanks for talking #autism #partnerships with us and @AutismMN @NMAutismSociety @ASAAlbanyNY on #CPHC chat today! @GailZahtz @sandyhubbard

Sandyhubbard Join us every TUESDAY at 1 pm ET for #CPHC chat - a vibrant, caring community with much to say :) GailZahtz Big #shoutout as always to @sandyhubbard who has been faithfully co-driving the chat for the past year! Couldn't do it alone! So fast #CPHC