!"#$% $' % ()**%+),%-$)# .

*%--/),0 /), (1$*2,"# '3//",$#4 /,)0 *)#4 -",0 $**#"''

Cenla addresses dlfflculLles ln sharlng personal experlence and Lhe chlld's wlsh Lo be heard and undersLood boLh
wlLhln Lhe famlly and by healLhcare professlonals. 1he appllcaLlons supporL boLh collecLlon of daLa, and sharlng of
experlences relaLed Lo personal wellbelng. lL ls dlfflculL Lo see paLLerns appearlng over Llme and Lo connecL
experlenced sympLoms wlLh acLlon (advlsed LreaLmenL) and resulL (experlenced healLh). Cenla alms Lo lncrease
learnlng and undersLandlng by enabllng for analysls and reflecLlon based on observaLlons ln dally llvlng. Cenla ls
ready Lo llnk famllles wlLh Lhelr cllnlcal mlcrosysLems vla naLlonal Swedlsh ePealLh lnfrasLrucLure and wlLh Lhelr
research and quallLy lmprovemenL plaLforms vla so-called naLlonal quallLy reglsLrles.

lnsplred by learnlng from scholars aL Lhe uarLmouLh lnsLlLuLe, Andreas Pager who has a daughLer wlLh Cl, or cysLlc
flbrosls, saw Lhe lmporLance of faclllLaLlng for everyone lnvolved ln Lhe cllnlcal mlcrosysLem Lo work LogeLher,
where chlld paLlenLs and famllles could conLrlbuLe and Lake a more quallfled role ln lessenlng Lhe lllness burden,
lncrease LrusL and sense of cusLomlzaLlon. 1he ploneer user group ls Lherefore qulLe naLurally Lhe Cl-communlLy.
ually llfe wlLh Cl. aLlenLs and famllles llvlng wlLh Cl are super users of healLhcare and welfare servlces. 1hey are
parL of Lhe 10 of Lhe populaLlon responslble for around 70 of publlc spendlng ln Lhe area. Lven Lhough famllles
and lndlvlduals develop Lhelr enLlrely own personal sLraLegles for self-managemenL, Lhere ls an opporLunlLy for
smarL phone appllcaLlons Lo be a supporL ln dlsease managemenL ln dlfferenL ways. Sklllful llvlng wlLh Lhe dlfflculL
wlll enable a llfe llke yours and mlne, creaLe Llme and make professlonal supporL sysLems more efflclenL.



!"#$ &' ()* See Cll's vlew on llfe wlLh cysLlc flbrosls hLLp://youLu.be/Wul72eMrlCl.
+,- .,/' 0/1&# -,23* See shorL presenLaLlon fllm hLLp://vlmeo.com/84233336.
!"#$ #2/ ',4/ ,5 $"/ $"/,2&/' #1. '/26&7/ ./'&81 -,23 9/"&1. $"/ #::* See ka[sa Sundeson's masLer Lhesls
ln servlce deslgn hLLps://www.dropbox.com/s/uoovq3z[g6laffm/ka[sas201hesls20llnAL.pdf.
!"#$ .,/' $"/ 7"&;. '#< #9,=$ $"/ -&'" $, 8/$ 9/$$/2 =1./2'$,,.* See Sonla's movle
hLLp://youLu.be/vy34SL8x4_s.
!#1$ $, ;/#21 4,2/* andreas.hager[genla.se and www.genla.se.
P A G E 72
3.3.2. DESIGN DRIVERS
The findings are summarized into three sections that forms the design
drivers. Even though possibilities are seen for Genia to be used by seve-
ral age groups, the foremost age group to consider in design is seen to
be children between 10 and 15 years. This is the age span when starting
to take more personal responsibility in self-management of disease,
simultaneously this is the age where children often start to use own
smartphones. Hence, the design drivers focus primarily on a target
group of children between 10 and 15 years and their families.
Support collaboration between the private
and the professional sphere
MY RESEARCH CONFIRMS the need of a support in understanding CF on
an individual level, and in making the monthly visits at the clinic more
informed, which is the core idea of Genia. Being more informed is seen
to improve care. This need is clearly reasserted by the clinicians, as
C A S E G E N I A
Support in sharing
experiences from daily life
Understand disease in
individual level
Symptom - Action - Effect
SUPPORT
COLLABORATION
WITH CARE TEAM
IN LAYING THE
CF-PUZZLE
EASE
MANAGEMENT
OF CARE IN EVERY
DAY LIFE
Need for structure &
sense of control
Ease information sharing
in the private sphere
MOTIVATE
ADHERENCE TO
TREATMENT
Take own responsibility and
becoming independent
Enable connection to others in
the same situation
80-90%
of CF-treatment builds
on the patients story
If I dont note things down
I forget what it was I should
remember
I know I should do my
exercise, but sometimes I just
cant make myself do it
FIGURE 3.21
Findings from research that
forms three design drivers.