The UOAConnection is a pub-

lication of the United Ostomy

Association of Canada Inc.
This bulletin is published 10
times a year in both English
and French (future) to provide
greater communication to the
chapters. Limited funds only
permit circulation to chapter
leadership who are encouraged
to share the information with
their members by including
items of interest in their news-
letters.

NATIONAL OFFICE:
United Ostomy Association of
Canada Inc.
344 Bloor St. West, Suite 501
Toronto, ON M5S 3A7
Email info1@ostomycanada.ca
416-595-5452
FAX: 416-595-9924
TOLL FREE: 1-888-969-9698
WEBSITE:
www.ostomycanada.ca
PRESIDENT:
Peter Folk
VICE PRESIDENT:
Ann Ivol
TREASURER:
Stephen Maybee
SECRETARY:
Carol Wells
DIRECTORS:
Ed Tummers
Ruth Kenney
John Molnar
Lorrie Pismenny
Andrea Manson
Rosemary Gaffray
Presidents Message
5 September 2014
Greetings all,
What a conference! Thanks to the St. Johns and Gander chapters for hosting
such a great conference. Our count was 148 people attending the conference,
and of that, 41 were first timers! There were great educational sessions, some
great new products to see in the exhibit hall, three great banquets, a great awards
luncheon and lots of opportunities for people to Connect on the Rock. I extend
a great big thank you to all the volunteers for all their hard work. It was really
appreciated. And thanks to the Delta Hotel for great attention to make every-
thing just run smoothly! Thanks to Gene Zapf who again was our auctioneer and
raffle ticket seller.
A special presentation was made to the three leaders of our major manufactur-
ers: Carol Robinson from Hollister, Michael Alderman from Coloplast and Syl-
vain Chiasson from ConvaTec. The Enterostomal Therapist Recognition Award
was given to Andrea (Andy) Manson. The Presidents Award was given to Lisa
Gausman. The Maple Leaf Award was given to Les Kehoe. Congratulations to
all worthy recipients!
At the Annual General Meeting, the special resolution was passed to adopt our
new by-laws and to change our name to Ostomy Canada Society (L'Association
Canadienne des Personnes Stomises). We have sent the necessary paperwork to
Corporations Canada and once we hear back from the government, we will be
changing our website, logo, banners, branding and manuals. Thanks to all the
chapters who sent delegates to the AGM and thanks for the round of applause
after the motion was passed!
A newly designed website was launched on July 1. If you have not had a look at
it, please take time to do so. There are many new features and a lot more con-
tent! One new feature is Ask the Ostomy Lifestyle Experts.People with an
ostomy, those with surgery pending, ostomy caregivers and healthcare profes-
sionals are encouraged to enjoy this column for education, inspiration and a
healthy dose of optimism from Julie Singer and Jo-Ann L. Tremblay, UOAC
Medical Advisory Committee, Ostomy Lifestyle Experts. Jo-Ann and Julie pro-
vide a fresh and candid outlook, through valuable tips and perspectives about
how to live with an ostomy, from their own experiences.

(Continued on page 2)
Volume 22 Issue 1
Presidents Message
September 2014
UOACONNECTION
To ask a question of the Ostomy Lifestyle Experts, send an email to:
ostomylifestyleexperts@ostomycanada.ca
or fill out the contact form on the website. By filling out the form, or sending an email, you are agreeing to let
your question be used in the Ostomy Canada magazine and /or our website. All replies will be through the
column, general in nature, and anonymous. So far there are four questions and replies.
Mark your calendars now the 2
nd
Annual Canada Ostomy Day will be held the first Saturday in Octo-
ber, 2014. We extend an invitation to all chapters across Canada to join in the Stroll Awareness Walk . We
created a twelve page procedure manual and have sent it to all chapter presidents. UOAC will set up the walk
webpage for your city, provide you with posters, postcards and pledge sheets, provide you with a certificate of
insurance, pay for approved expenses such as permits and first aid staff. So far, the following chapters have
set up their fund-raising website and declared a location and time for the walk: Regina (first year), Hamilton
(first year), Ottawa (first year), Saskatoon (first year), Halifax, Calgary, Moncton, Niagara and Moncton.
There are other chapters are still in planning stage: Fredericton and Gander. Of special note: Ostomy Toronto
is lighting up the CN Tower on the evening before the Stoma Stroll.
As well, we have continued with the Virtual Walk. What do I mean by a virtual walk? Well, if your chapter is
not hosting a Stoma Stroll, or if you live too far away to attend, you can still do a walk in your own communi-
ty. Simply go to the website: www.stomastroll.ca and look on the right-hand side and then click on Virtual
Walk. Then click on the link that says Register Now. You can ask your friends and family to support you
through email or social media, or there is a pledge form on the website that you can print out and distribute to
all your sponsors. What a great way to raise awareness and much needed funds to support the great things that
UOAC is planning in the next few years.
The board of directors will continue to hold monthly online meetings (usually a Saturday at 8:00 a.m. CST).
Any chapter president that is interested in sitting in as an observer is welcome. Please send an email to the of-
fice or to me to get an invitation. Our next online meeting is Saturday, September 13.
A great many chapters are doing fund-raising to support sending youth to UOAC Ostomy Youth Camp. Jim
Fitzgerald and Jason Boyd are embarking on a journey called GI J's - No Guts No Glory 2 guys 2 ostomies
130 km race by paddling a canoe for 130 km on September 13. UOAC has been involved in their fund-
raising activities and have set up a fund-raising webpage at: http://ostomycanada.akaraisin.com/
nogutsnoglory. They have set an ambitious goal of $25,000 and are already 44% of the way there! You can
purchase bracelets on the website to show your support. We have also opened up the fund-raising website
so that anyone can register to be a participant. You do not need to paddle, just help spread the word and
help raise donations. Good Luck Jim and Jason!
The Bursary Committee has set the deadline for applications: November 1, 2014. There are five $1000 bursa-
ries available. There are two different types: Ostomates who are attending post-secondary education courses
and Registered Nurses who are attending courses to become an ET. Help spread the word about these two
great new programs! Criteria and application forms are available on our website.
Peter Folk
President, United Ostomy Association of Canada
Ostomy Canada Society
L'Association Canadienne des Personnes Stomises
peter.folk@ostomycanada.ca
(Continued from page 1)
Page 2
UOAConnection






























Page 3 UOAConnection


Website/Social Networking
In 2011we had 660,359 hits from 19,160 unique visitors. During 2012, there were 728,083 hits on our website
by 27,019 unique visitors. During 2013, there were 513,260 hits on our website by 20,245 unique visitors.
For an online map of chapters and districts, click here: http://www.ostomycanada.ca/maps2/map.html
If you have any comment on our website, please contact: Angie Schickerowski or Peter Folk through the na-
tional office email web@ostomycanada.ca
Our website is very popular, a great source of information and at least 6,350 other websites directly link to
ours. More and more people are using the Internet to get Ostomy information and our contact form is used
regularly to contact the office.
Our website is being redesigned to give it a new look and feel, and to make it mobile friendly. Look for some
exciting changes in the next few weeks and months!

Item
August
2014
Unique web visitors (Year to Date) 30,716
Number of Web Visitors (Year to Date) 63,841
Web Hits (Year to Date) 1,001,091
Facebook page likes 251
Facebook group members 580
Facebook Parents group members 56
Facebook 20/40 group members 20
Discussion Board members 68
Twitter Followers 255
LinkedIn group members 38
LinkedIn followers 20
Google+ Circle members 62
uoac1 group members 38
Blog followers 4
Blog Posts 14
Comments on our website [NEW] 8
Stoma Stroll Website Visitors 1,559
Stoma Stroll Unique Visitors 1,419
Stoma Stroll Webpage Views 2,103
We are now on Pinterest
http://www.pinterest.com/ostomycanada/
7
followers
Page 4
UOAConnection
Contd from Page 1
OFFICE COORDINATOR
Carole Pew
OFFICE CHAIR
Stephen Maybee
NATIONAL OFFICE
ADDRESS
344 Bloor St. W., Suite 501
Toronto, ON M5S 3A7
OUTREACH
Administrator: Andy Manson
AWARDS :
Ann Ivol (Leader)
Delilah Guy (Member)
PARENTS OF CHILDREN
WITH AN OSTOMY:
Lyn Atkins (Leader)
Corry Stewart Dorosh (Co-
Leader)
Pat Cimmeck , Karen Lindsay
(Members)
PROFESSIONAL
ADVISORY (INDUSTRY,
MEDICAL OTHER)
Delilah Guy, Jo-Ann Tremblay,
Rory Hornstein, RD, Julie
Singer, Karen Bruton RN BScN
MCISc-WH CETN(C),Shabita
Teja, Contacts from Hollister,
ConvaTec, Coloplast and Salts,
Current CAET President,
Contacts from Crohn's and
Colitis, Colorectal Cancer
Assoc., Bladder Cancer Canada,
etc.
SASO:
Betty Woolridge (Leader)
Ann Ivol, Vacant (Members)
YOUTH CAMP:
Pat Cimmeck (Camp
Administrator)
Lisa Gausman, Karen Spencer
(Members)
20/40:
Angie Schickerowski (Leader)
Andreja (Andy) Lampreht
WHY DO CHAPTERS NEED
OSTOMY CANADA SOCIETY?
By Ed Tummers
At the 2012 UOAC Conference in Toronto, Judy Steeves chaired a session for Chap-
ter Presidents. The minutes of the meeting were submitted to the Board of Directors
for consideration. I was Secretary at the meeting and I have been asked repeatedly for
copies of these minutes. Why? Two reasons. Since then, there has been a major
change in the composition of the Board; and, the minutes of the meeting were never
circulated to the absent Chapter Presidents. Therefore, as we begin our journey to-
gether as partners in Ostomy Canada Society, I think it worthwhile to reprint those
minutes here. Your Board of Directors will be reviewing these observations as we
work towards re-aligning the Society with the new Canada Not-for-profit Corpora-
tions Act.
Ostomy Canada Society is a voluntary association of local chapters across Canada.
Therefore, member chapters have no obligation to the national office if it fails to meet
their needs.
Ostomy Canada Society exists to support the work of local chapters across Canada.
Ostomy Canada Society fulfills its mission by providing resources and opportunities
for member chapters to fulfill their missions. Ostomy Canada Society should not be in
competition with local chapters for individual members.
What did the member chapters tell us about their needs? Are we listening?
Summary of discussion (From the Chapter President's Session in Toronto 2012)
Working together nationally, Ostomy Canada Society is a means to empower member
chapters to work together to accomplish things that they could not do by themselves.
Some of the most important of these programs are: Youth camp; Visitor program cer-
tification standards; Ostomy Canada magazine; national website; District support ser-
vices; national conferences.
Organized according to the pillars of the strategic plan, here is a summary of the dis-
cussions

Outreach
Youth Camp is recognized as one of the most important programs offered.
We expect national liaison with healthcare professionals, and Industry partnerships
that can't be done locally.

Governance
Chapter Outreach Support Services needs to be more visible.
We expect guidance to chapters in implementing new legislation.
We expect national to act on behalf of non-incorporated chapters for charitable dona-
tions.
We expect timely promulgation of survey results.
We need the national liability insurance plan (e.g. to permit information booths in
shopping malls).
We want the option of having national dues billing available, if locally desired.
Page 5 UOAConnection

Advocacy
We would like to see explanations of new initiatives like the Pan-Canadian Ostomy Reimbursement Policy reform;
and the Ontario pilot program.
We expect national to provide pamphlets and educational material.
Visitor training is considered as another key program. We expect national to continue to
provide national standards for certification. Adherence to these standards gives our visitor program credibility in
hospitals.
We expect District support services to be accessible to all chapters.


Finance and Fundraising

We expect responsible expenditures of funds and proper accounting and audits. We expect national to look behond
membership funds.

Marketing and Communications

Most of us are proud of the Ostomy Canada magazine and the image it portrays. We need to be more diligent in
spreading thee contents of the Connection.
We expect national to provide appropriate education pamphlets and booklets.
We expect periodic national conferences to promote cooperation between regions.
We expect regional chapter information sessions to promote cooperation within regions.
We expect World Ostomy Day to be promoted locally and nationally.
We rely on a national website as a home page for ostomy related information.

Jokes for Today
A woman goes to her boyfriend's parents' house for dinner. This is her first time meeting the family and she is very
nervous. They all sit down and begin eating a fine meal. The woman is beginning to feel a little discomfort, thanks
to her nervousness and the broccoli casserole. The gas pains are almost making her eyes water. Left with no other
choice, she decides to relieve herself a bit and lets out a dainty little fart. It wasn't loud, but everyone at the table
heard the poot. Before she even had a chance to be embarrassed, her boyfriend's father looked over at the dog that
had been snoozing at the women's feet, and said in a rather stern voice, "Ginger!" The woman thought, "This is
great!" and a big smile came across her face. A couple minutes later, she was beginning to feel the pain again. This
time, she didn't hesitate. She let a much louder and longer fart rip. The father again looked at the dog and yelled,
"Dammit, Ginger!" Once again the woman smiled and thought, "Yes!" A few minutes later the woman had to let
another one rip. This time she didn't even think about it. She let rip a fart that rivaled a train whistle blowing.
Again, the father looked at the dog with disgust and yelled, "Dammit, Ginger, get away from her before she shits
on you!"

Reaching the end of a job interview, the Human Resources Officer asks a young engineer fresh out of the
Massachusetts Institute of Technology, "And what starting salary are you looking for?" The engineer replies, "In
the region of $125,000 a year, depending on the benefits package." The interviewer inquires, "Well, what would
you say to a package of five weeks vacation, 14 paid holidays, full medical and dental, company matching
retirement fund to 50% of salary, and a company car leased every two years, say, a red Corvette?" The engineer
sits up straight and says, "Wow! Are you kidding?" The interviewer replies, "Yeah, but you started it."
Page 6
UOAConnection
A Special Request
Hi,
My name is Julie Easley and Im a research coordinator at the Dalhousie University Family Medicine
Teaching Unit in Fredericton, NB. I found your information on the internet through the Ostomy
Association Website as a contact for the ostomy support group in your area. Im currently working on a
national study looking at coordination of care for cancer patients and Im hoping you may be able to
help us distribute information about our study to any colorectal cancer survivors within your network.

Our study is called The CanIMPACT Study (Canadian Team to Improve Community-Based Cancer
Care Along the Continuum) and the Principal Investigator is Dr. Eva Grunfeld from the University of
Toronto, Dept. of Family and Community Medicine. Together with a team of researchers, clinicians
and policy makers from across Canada, we are focused on finding ways to improve the coordination
and continuity of care between family physician care and specialist care for cancer patients and
survivors throughout the cancer journey. We are currently recruiting colorectal cancer survivors (1-4
years post-diagnosis) from across Canada to participate in a telephone interview to discuss their
experiences with cancer care. Any assistance you could provide with spreading the word about our
study would be greatly appreciated!! I have included our recruitment blurb below and have attached our
recruitment poster. If you would like me to send you recruitment postcards to distribute or posters,
please let me know. If you would like more information on the study, please dont hesitate to contact
me.
Thanks!
Julie

Here is our recruitment blurb:

The CanIMPACT Research Team is currently looking for Canadian colorectal cancer survivors to
participate in their study looking at ways to improve the coordination of care for cancer patients
throughout the cancer journey.

If you are 19 years of age or older and between 1-4 years post-diagnosis of colorectal cancer, you may
be eligible to participate in a telephone interview!

For more information, contact Julie (Research Coordinator)
Phone: (toll-free)
Twitter:1-866-323-1833 @CanIMPACT_Study
Facebook Page: CanIMPACT Study

This study has been reviewed by the Horizon Health Network Research Ethics Board (File #2013-1930)
and the University of Toronto Research Ethics Board (File # 30063)

Page 7 UOAConnection
Contd from Page 4
GOVERNANCE:
Administrator: Ann Ivol
BYLAWS:
Ed Tummers (Leader)
Carol Wells, Lorrie Pismenny (Members)
MEMBERSHIP
Andrea Manson (Leader)
Ann Ivol, Steve Maybee, Ruth Kenney (Members)
NATIONAL OFFICE:
Steve Maybee (Leader)
Peter Folk, UOAC Office (Members)
NOMINATIONS & ELECTIONS:
Peter Folk (Leader)
Ann Ivol (Member)
POLICIES & PROCEDURRES:
Ann Ivol (Leader)
Delilah Guy, Rosemary Gaffray (members)
STRATEGIC PLANNING (ANNUAL
OPERATIONAL PLAN
Executive Committee (Leader)
Board of Directors, UOAC Office (Members)
PRIVACY:
Privacy Officer (Vacant)
John Molnar (Member)
COSS (DSS):
Roger Ivol (Leader)
Jean-Pierre Lapointe (Quebec Rep),
Vacant (Pacific Rep),
Angela McGinn (Atlantic Rep), Gerard Dakiniewich
(Prairies Rep), John Molnar (Southern Ontario Rep
(Niagara; Brantford; Halton-Peel; Toronto; London),
Roger Ivol (South Ontario Rep (Hamilton; Stratford;
Kitchener-Waterloo; Windsor; Sarnia),
Richard Olley (North Ontario Rep)
ADVOCACY:
Ed Tummers Administrator
Advocacy:
Ruth Kenney (Leader)
Delilah Guy, Lorrie Pismenny, Jim Fitzgerald
(Members)

Donate to UOAC

We have signed up to receive donations online through Cana-

daHelps.org. This is a handy way for you to make a donation with-
out even leaving the comfort of your computer chair. Simply visit
our website at: http://www.ostomycanada.ca/ and click on the im-
age that looks like this:




This will bring up a secure website that will allow you to enter
your credit card or PayPal information. Canada Helps will issue a
donation receipt right away and email it to you.
Have you set up your 2014 monthly donations yet?
Set it and forget it. Heres how:
1. Set up or log into your CanadaHelps MyCanadaHelps account.
Remember that you need to save a credit card on file for
monthly donation!
2. Click the Monthly Giving tab.
3. Search for UNITED OSTOMY ASSOCIATION OF CANA-
DA INC.
4. Click DONATE MONTHLY.
5. Enter the details of your monthly donation.
Visit our donation page: http://www.ostomycanada.ca/donations
You can now donate to the United Ostomy Association of
Canada Inc. through PayPal
Page 8
UOAConnection
Chapter Information on the Website
Did you know that our website www.ostomycanada.ca had over a half million hits last year? A lot of the visi-
tors visited the website to look for a support group in their area. Therefore, it is important that this information
be kept up to date! Make sure when sending the information in to the UOAC office that the chapters contact
information is current - phone number, email contact, newsletter availability, website, annual dues, meeting
dates and times. Visit our chapters page on our website at http://www.ostomycanada.ca/chapters and let the
UOAC office know via email if any of the information needs to be updated. Weve had at least one chapter
past president contact the office to tell us that the website still included their phone number instead of the cur-
rent president. Please check your chapters listing to make sure the updates have been done correctly!

Upcoming Events:
Congress 2015 will take place on 24-25 September 2015. The AQPS Ostomy and the Coalition Quebec-
Levis welcome you at the Hotel Plaza Quebec, Boul Laurier, Ste-Foy, Quebec. A training session will take
visitors Thursday, September 24, 2015. Further information will be provided regularly.
Saturday October, 4, 2014 Annual Canada Ostomy Day.
Saturday October 4, 2014 Annual Stoma Stroll Awareness Walk.
October 17, 2014 Deadline to comply with Canadas Not-for-Profit Act
November 18, 2014 Niagara Ostomy Day. 2:00 p.m. 7:00 p.m.
Note: If your chapter has an upcoming event that you would like added here or on the national website, please
email the details to Carol Wells through the national office email.


Jokes for Today
Three Elderly Sisters
Three sisters, ages 92, 94, and 96, live in a house together. One night
the 96-year-old draws a bath. She puts one foot in a pauses. She yells
down the stairs, "Was I getting in or out of the bath?"

The 94-year-old yells back, "I don't know. I'll come up and see." She
starts up the stairs and pauses. Then she yells out, "Was I going up
the stairs or down?"

The 92-year-old is sitting at the kitchen table having tea and listening
to her sisters. She shakes her head and says, "I sure hope I never get
that forgetful. She knocks on wood for good measure. She then re-
plies, "I'll come up and help both of you as soon as I see whos at the
door.
Page 9 UOAConnection
FROM THE EDITOR

EDITORS MESSAGE
In the June issue of this August publication (or was it the August issue of the June publication no, it was
definitely June), I highly recommended you attend the 14
th
UOAC conference in St. Johns NL. I suggested
youd miss a great time if you stayed home. I assured you the learning experience would be beyond compare.
And I urged you to take advantage of the Newfoundland hospitality for which our hosts are rightfully praised.
National president Peter Folk waxed eloquently about the conference in his message on page 1. Besides wax-
ing eloquently, he also wrote nice things. And the floors of the hotel looked superb after Peter waxed them,
too.
Almost 150 people registered and I hope you were among them. If not, and you know who you are, start plan-
ning now and putting your shekels aside for Winnipeg in 2016.
What you missed in St. Johns should not have been missed. There were the usual strong education sessions
and dinners and auctions and raffles. There were old friends to be seen and new ones to be made. There was a
fantastic kick-off event at Bridie Molloys Irish Pub on St. Johns famous George Street, a strip of bars and
pubs that offered great entertainment all weekend long, for those of us insane enough to partake.
At Bridie Molloys, there was the traditional Newfoundland Screech-In. Countless conference attendees actu-
ally and really and truly KISSED A COD, a live fish well almost live as it still had scales and an icky cold-
fish feel on the lips, but it really had expired a short time before. Those brave souls also downed a swig of
Screech (Newfoundland rum) and swore before the throngs they would live a clean life as honourary New-
foundlanders.
If THAT wasnt a highlight, listening to Brenda Elsagher uproariously talk of her life as an ostomate, a former
hairdresser, a wife, mother, author, and now a highly-sought-after speaker, certainly was. I warned you in the
June UOAConnection that she would bring the house down and she did. The folks at the Delta had repair
work to do after her speech.
Awards were presented to worthy recipients (see Peters piece on Page 1). The AGM went without a hitch and
the proper motions were passed without difficulty.
And lastly, the organizing committee and volunteers, led by chair Carol Wells and coordinator Delilah Guy,
did yeoman service for us all. Thank you most sincerely for your superb efforts.
Now, you guys --- plan ahead. Well see you in Winnipeg in 2016.
Joel Jacobson

Page 10
UOAConnection
CONFERENCE:
Delilah Guy (Administrator)
Carol Wells ,St. Johns, & Gander Chapters
(Members)
INTERNATION RELATIONS:
Pat Cimmeck (Leader)
Lisa Gausman (Member)
PUBLIC AWARENESS (INCLUDES
COD&WOD):
Andrea Manson (Leader)
Delilah Guy, Carol Wells, Lorrie Pismenny
(Members)
FINANCE & FUNDRAISING
Administrator: Steve Maybee
FINANCE:
Steve Maybee (Leader)
Executive Committee (Member)
FUNDRAISING:
Andrea Manson (Leader)
Carol Wells, Andrea Manson, Roger Ivol, Steve
Manson, John Delaney (Members)
BURSARY:
Rosemary Gaffray (Leader)
Roger Ivol, Andrea Manson, Rosemary Gaffray
MARKETING & COMMUNICATION
Administrator: Carol Wells
CONNECTION:
Carol Wells (Leader)
Ann Ivol, Joel Jacobson, Lorrie Pismenny UOAC
Office (Members)
OSTOMY CANADA:
Lisa Gausman (Leader)
Lorne Aronson (Advertising), Elizabeth Lindner,
UOAC Office (Members)
PUBLICATIONS:
Ann Ivol (Leader)
Joel Jacobson, Andrea Manson (Members)
SOCIAL MEDIA / WEBSITE:
Peter Folk, (Leader)
Angie Schickerowski (webmaster), Andrea Manson,
Lisa Gausman, John Molnar, Carol Wells
SASO Group visit to The Rooms












Ann Ivol being Screeched in at the
2014 Conference along with
Andy Borrill
Page 11 UOAConnection

Page 12
UOAConnection

LOOK FOR UNSUNG HEROES IN YOUR CHAPTERS. LET'S
HONOUR THEM BY TELLING US WHAT THEY DO.

Surely there have to be men and women in your chapters who are doing all the little things that make the chap-
ter tick. Email Joel Jacobson, UOAConnection editor, through the national office email at
info1@ostomycanada.ca with their story.
PEG BOARD

Your 2014-2015 Board of Directors



















Back row: Peter Folk, John Molnar, Steve Maybee, Ann Ivol, Rosemary Gaffray, Lorrie Pismenny, Ed
Tummers, Ruth Kenney
Front Row: Andrea Manson, Carol Wells
Page 13 UOAConnection