Professional Documents
Culture Documents
Research Assignment
Abstract: The following hypothetical research study was constructed by the author as part of a Fourth-
Year assessment requirement. It is to be assumed that the hypothetical research was conducted by a
hypothetical staff member at Curtin University. She was to be a speaker at an upcoming Principals
Conference on Childhood Adversities. All subsequent ethical processes and procedures were
conducive to this role.
Key words: Grief, Trauma, Impact, Support, Siblings, Parents, Schools, Academic Performance
Introduction
Very little was found on children aged between 7 and 12 who have lost a sibling to sudden,
unexpected or ambiguous death or the impact this sibling loss has on the parents and their
roles or in the support the surviving child requires to navigate their academic world. Little is
documented about how this experience impacts and underpins a child’s academic
performance and; the subsequent relationships developed after this adversity with schools.
This discovery morphed into the basis for this research study – the lens would now be aimed
and focused towards unexpected, sudden and ambiguous loss and the impact on a child’s
education/academic performance and the supporting roles of parents and schools.
Many domains were considered, regarding examining a child whose sibling has died –
emotional, cognitive, social well-being and function, child’s developmental stage – all of which
are inextricably linked – and all affect academic performance. It is imperative that the impact
of sibling loss is not under-stated and that the long-lasting impact of this tragedy is
Brigitte Carter SN Assignment 2 Dr K.
acknowledged for on-going and future well-being, outcomes and economic success of the
surviving sibling. It is important for schools that as an institution they recognize and
understand that people will grieve differently and that students are supported and not
disenfranchised of their grief. Understanding the impacting nature and trauma a child
experiences when a sibling dies - provides schools with possible guidelines and opportunities
to support the child – in a way in which their needs are met
Significance
There are many stakeholders who will benefit from recognizing the impact the loss of a sibling
has on a child in the primary school years. Longitudinal studies by Fletcher, Mailick, Song &
Wolfe (2013) indicate there are spill-over long-lasting impacts which may affect a child as they
enter adolescence and adulthood. For example; there are socio-economic implications as a
result of reductions in years of schooling (p. 804). Studies have found that early exposure to
adversity may be a precursor to future maladaptive behaviours and is also likely to impact
coping mechanisms (Tan, Wang & Ruggerio, 2017, p. 2749). Being aware of a surviving
sibling’s needs and providing the proper support and care are paramount to the child making a
successful transition in to the future such as; employment or further education.
Researchers have identified that surviving siblings are impacted in different ways (Fletcher,
2013, p. 813). Worden, Davies & McCown, (1999); McCown & Davies, (1995) have identified
specific behaviours, that genders exhibit - and need to be addressed. These include for
females: anxiety, depression, withdrawn behaviour, thought problems, attention-seeking
behaviours and somatic problems (p. 6). Males were more likely to be withdrawn, have poor
concentration or externalize behaviours (p. 6). Sleep problems are an issue for both genders
and has been found by Curcio, Ferrara & Gennaro, (2006) to affect coping, as well as learning
processes and memory consolidation (Smith, 2001; Hobson & Pace-Scott, 2002) Parents and
schools have an opportunity to recognize these behaviours and work together to support and
develop contingency plans for individual children.
Background
Every child is unique as is their relationship with their sibling. Sibling relationships have been
defined as being a reflection of the self and their world; sharing a past, present, and future
history that is unlike any other relationship (Machajewski & Kronk, 2013, p. 1). Therefore, the
likelihood of this adversity having a profound impact on the surviving sibling’s development is
Brigitte Carter SN Assignment 2 Dr K.
imminent. Current literature by Machajewski & Kronk, (2013) & Gibbons, (1992) support this
ideology and the need for action to support the traumatized child.
A comprehensive literature review was conducted to ascertain the most salient and current
findings on how the death of a sibling impacts the academic performance of a child in the
primary school years. Current literature agrees that there are significant factors which impact a
child when they lose a sibling. For example; One of the most common findings is that the
adverse behavior of the parents profoundly affects a child’s development (Machajewski, &
Kronk, 2013, p. 1; Gibbons, 1992, p. 65) particularly at what Erikson refers to as the
psychosocial stage (6 -11 years) which may lead children to develop a sense of inferiority and
vulnerability (McCown & Pratt, 1985, p. 333). Research by Crehan, 2004; Tan, Wang &
Rugerio, 2017, p. 2748-2749) found parent behaviour after the death of their child had a
profound adverse effect on the surviving child’s cognitive, emotional and social well-being. It is
vital research addresses these complex behaviours and relationships.
The focus of the research is on children in the Primary School 7-12 years. Therefore, what is
important is not only what parents are doing to support the grieving child, but what and how
schools are doing to assist children who have a sibling who dies. Not only while the child is at
school but how the connection is made with the parents and child to link together - to provide
a more cohesive and holistic support base for the child.
Research Questions
The research questions have been adapted from the literature review outcomes and are as
follows;
Main question
1. Does the death of a sibling impact the academic performance of a child in the Primary
School Years?
Sub-questions
2. Does the behavior and support of a parent impact the surviving child’s academic
performance?
3. Does the support of the school impact the surviving child’s academic performance?
These two sub-questions underpin the main question by drawing out the separate issues of
how and what parents and schools do as separate entities; and then reconnecting them to
decipher how they impact a child’s academic performance. The purpose of this study was to
investigate current support and interventions parents and schools are giving primary school-
aged children to assist them with their academic performance after a sibling has died. There
was also an opportunity to get a snap-shot of the comparative perceptions of children v’s
Brigitte Carter SN Assignment 2 Dr K.
parents and how they perceive there needs as being met. Because of the sensitive nature of
the topic, the researcher chose to have the children complete only the questionnaire to reduce
the stress of talking about their deceased sibling in a clinical way. This comparative view has
previously been undertaken in research by Murray (2001) which indicated that there are often
conflicting perceptions regarding the needs of a child being met.
Methodology
Participants
Data reported in this research paper are part of a longitudinal, qualitative mixed-method study
that examined how children’s academic performance is affected in the primary school years
when a sibling dies – suddenly, unexpectedly or ambiguously. Prior to the research, the
author had discussed her study idea with some family, friends and acquaintances who had
children whose sibling had died – and the need for participants in a research study she was
planning. Before beginning the planning stage, each was telephoned, to briefly discuss the
intended research study. Several of them expressed an interest or willingness to participate.
The recruited participants were parents and children that were family, friends and associates
who had a child who had experienced the death of a sibling and fell into the specified criteria
brackets; Had a child 7-12 years; One parent willing to participate; Six months since the death
of the child (see Table 1).
The parents were sent a survey (see Appendix 3) of interest in participation which explained
that the study would be conducted in Three Series each which consisted of three stages;
These modes of sourcing information were done in a specific way to enhance relationships.
For example; Stage One: Allowed the first opportunity to get closer to the participant through
the written word; Stage Two: Allowed the voice to be used to develop trust and familiarity and;
Stage Three: The face-to-face contact and body-language enhanced the relationship. Letters
outlining the research and consent forms were sent to each family. Parents were sent an
Information Letter: Parents – Child and Individual Participation (see Appendix 4); Consent
Form for Parents – Child and Individual Participation (see Appendix 5); Consent Form for
Older Primary School Children (10-12) (see Appendix 6 & 7). Consent Form for Young
Children (see Appendix 8 & 9) Questionnaires. Where parents were both participating in the
study, they were asked to complete the documentation separately. In the children’s
Brigitte Carter SN Assignment 2 Dr K.
questionnaire, a series of questions (similar in nature to the adult questions), were asked, but
were written in a simplified way for easy understanding. The reasoning for including the child’s
perspective was to determine if there were conflicting views between adult responses and
children’s responses. The age groups were chosen primarily because of the lack of
documentation found in the research literature done om this age group on sibling death and
their relevance to developmental stages.
The second stage was a telephone survey with a Yes, No or Unsure response. The third stage
was an interview to be held at the University in a secure and comfortable room. Discussion
was held about the best place to meet and the participants home was decided a non-option.
All participants were happy to attend the University for the interview and would be met and
sign -in as Visitors at the front-office.
Table 1 Individual/ Environmental Characteristics of Parents and Surviving Siblings and Characteristics of
the Sibling’s Death
Individual Characteristics
Adapted from Morris, Gabert-Quillen, Friebert, Carst & Delahanty, 2016, p. 62). Accessed from https://www-sciencedirect-
com.dbgw.lis.curtin.edu.au/science/article/pii/S0885392415004583
Brigitte Carter SN Assignment 2 Dr K.
Seven families were selected to participate in the study. Seven children (four aged 7-9 and
three aged 10-12) and seven parents (4 mothers and three fathers). All were biological
parents – although that was not criterion. All experienced the sudden or unexpected death of
a child or sibling (see Table 2).
Research Design
Phenomenological Approach
This research was underpinned by the Phenomenological Approach which aims to capture the
broad lived experiences of those who had suffered the experience of losing a child or sibling.
Studies by Coulter & Mooney (2017) have identified the need for robust studies which address
the phenomenological experiences of those who have been impacted by trauma.
Narrative Approach
This research was also underpinned by the Narrative Approach where the inquiry constructs
the personal journey of the individual (Patterson, 2015).
Data analysis
Brigitte Carter SN Assignment 2 Dr K.
Questions were categorized in to four headings; Personal Behaviours; Parent Support; School
Support and; Academic Performance.
The Questionnaire used the Likert Scale to analyse the frequency of the response. The SD
and D were added together as were the SA and A. This was done for each question and
recorded in RED. The Child’s Questionnaire was also analysed using the same format but
recorded in BLUE with each question matched up to one of the Parent questions. The Survey
questions were also matched up to the RED questions in GREEN. By doing this the validity of
the responses could be checked. The interview questions used BLACK to record responses
and were also matched up and any residual responses recorded. This was repeated for
Series 1-3 and results were compared and recorded.
Research Ethics
Ethics and integrity underpin all research – not only from a legislative perspective but also
from a moral standpoint and should be “…an ethos that should permeate the way those engaged
in human research approach all that they do in their research”.p.3 National
No translators were required. No changes were made throughout the research to the initial
study application. There were no specific cultural dimensions within the research and
therefore no conflicts of interest or cultural specifications which needed to be met. For
example; Aboriginal and Torres Strait Islanders were not specifically identified – the
information was generic with criteria being predominantly age specific.
Brigitte Carter SN Assignment 2 Dr K.
Due to the nature of the research and under the governing codes - risk factors were identified
and represented in the Application. These were identified by the researcher in Section 2:13 of
the ethics Application form “Potential harm or risks to participants”, however, it is argued that
the potential risks are super-ceded by the potential benefits. See NHMRC guidelines;
“2.1.2 Risks to research participants are ethically acceptable only if they are justified by the potential
benefits of the research”.
An example of risk may include; the participants becoming over-whelmed when speaking
about the loss of their child or sibling. Counselling services from within the University were
arranged for any adult or child who may experience any ill-effects from the research. For
example; the research may evoke emotional pain which is causing anxiousness. The
counsellor can address each situation as it arises in line with the NHMRC guidelines;
“5.5.2 Monitoring arrangements should be commensurate with the risk, size and complexity of the
research”.
Data Storage:
The researcher created a Data Management Plan conducive to the requirements of the
institution and its governing bodies. As the research was conducted by a staff member of the
University – protocol was followed - and the data was stored within the University. The
researcher submitted a Research Project Data Storage Request and completed the required
essential elements of storage – this is an essential component of the storage phase as it
enables sense-making of the data if future access is required. This included comprehensive
features including; Title, Creator, Unique Number Identifier, Key dates associated with the
data. Other aspects outlined were completed including all sources (citations) and the Field of
Research. Due to the data sensitivity, the data was classified as In-Confidence and Protected
Storing data correctly alleviates the possibility of unauthorized access or use (Curtin
University, 2018).
Results
The results indicate that in most cases parents had failed to make schools aware of their
adversity which was reflected in the responses to poor school support such as lack of tutoring
or extra-curricular activities. Provision of resources to children such as books, DVD’s etc were
also scaled very low with both parents and schools. Counselling was another area both with
parents and schools that had little support. All parents and most of the children recorded a
lack of learning about grief and loss at school. Most children across the year had attended
Brigitte Carter SN Assignment 2 Dr K.
school regularly but had developed behavioural problems with boys showing external
misbehaviours conducive to studies by Habibullah & Ashraf (2013, p. 47); and girls being
more - teary and depressed. This finding is conducive to previous findings by Worden, Davies
McCown (1999, p. 6). Parents recorded a lower level of sleeping issues than children. Coping
requires sleep (Curcio, Ferrara & Gennaro, 2006, p. 324) and plays an integral role in the
“learning processes and memory consolidation” (Smith, 2001; Hobson & Pace-Scott 2002
cited in Curcio et al.,2006, p. 324). Parents also scored their children as doing better in school
than the children did themselves.
The results show that over the year there was little or no improvement in parent or school
support. The academic performance of the cohort of students had continued to decline –
indicating the need for more robust communication between parents and schools. There also
needs to be programs and contingency plans in place.
Limitations
A comprehensive family assessment should include all siblings feedback within a family as
“each siblings relationship is unique (Machajewski & Kronk, 2013, p. 5)”. Parent and children
self-ratings were also subject to bias (Wong, Ho, Wong, Tung, Chow, Rao, Chars & Ip, 2018,
p. 1533). Limitations exist due to a lack of comparison with terminal illness or deaths where
the families have been prepared for death.
Longitudinal studies need to be across the life-span to get a more comprehensive evaluation
of the long-term impacts on academic performance due to sibling loss in the Primary School
years. The inclusion of the teacher or school and the use of academic results that compared
before and after the experience would be required in future research.
Action
The Principals requested that the information be summarized and added to their newsletter. A
Guideline for Primary Schools was also created to assist and guide Principals and staff with
children who have experienced the unexpected, sudden or ambiguous death of a sibling.
Brigitte Carter SN Assignment 2 Dr K.
References
Coulter, S. & Mooney, S. (2017). Much more Than PTSD: Mothers’ Narratives of the Impact of
Trauma on Child Survivors and Their Families. Contemporary Family Therapy. Vol. 40 (3).
Crehan, G. (2004). The Surviving Sibling: The Effects of Sibling Death in Childhood.
Psychoanalytic Psychotherapy. Vol. 18 (2). Pp. 202-219. Accessed from https://www-
tandfonline-com.dbgw.lis.curtin.edu.au/doi/abs/10.1080/14749730410001700723
Curcio, G., Ferrara, M. & De Gennaro, L. (2006). Sleep loss, learning capacity and academic
performance. Sleep Medicine Reviews. Vol 10. Pp. 323-337. Accessed from https://www-
sciencedirect-com.dbgw.lis.curtin.edu.au/science/article/pii/S1087079205001231
Curtin University. (2018). Research data management: Data management plan. Accessed
from http://libguides.library.curtin.edu.au/c.php?g=202401&p=1333108
Fletcher, J., Mailick, M., Song, J. & Wolfe, B. (2013). A Sibling death in the Family: Common
and Consequential. Demography, Vol. 50 (3). Pp. 803-826. Accessed from https://www-jstor-
org.dbgw.lis.curtin.edu.au/stable/42919901?seq=1#page_scan_tab_contents
Gibbons, M. B. (1992). A Child Dies; A Child Survives. Journal of Pediatric Health Care. Vol. 6
(2), pp. 65-72. Accessed from https://ac-els-cdn-
com.dbgw.lis.curtin.edu.au/089152459290123L/1-s2.0-089152459290123L-
main.pdf?_tid=b0021770-4e6a-4db7-b54d-
8f6e964fe78b&acdnat=1534564591_b0d51a441146bc032060196617e91981 Hall, C. (2011).
Hall, C (2011). Beyond Kubler-Ross: Recent developments in our understanding of grief and
bereavement. Australian Psychological Society. Accessed from
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https://www.psychology.org.au/for-members/publications/inpsych/2011/dec/Beyond-Kubler-
Ross-Recent-developments-in-our-und
Habibullah, S. & Ashraf, J. (2013). Factors Affecting Academic Performance of Primary School
Children. Pakistan Journal of Medical Research. Vol. 52 (2). Pp. 47-52. Accessed from
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Journal for Nurse Practitioners. Vol. 9 (7). Pp. 443-448. Accessed from https://www-
sciencedirect-com.dbgw.lis.curtin.edu.au/science/article/pii/S1555415513001773
McCown, D. E. & Pratt, C. (1985). Impact of sibling death on children’s behavior. Death
Studies,
Vol. 9 (3-4). Pp 323-335. Accessed from https://www-tandfonline-
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McCown, D. E. & Davies, B. (1995). Patterns of grief in young children following the death of a
sibling. Death Studies. Vol. 19 (1). Pp. 41-53. Accessed from https://www-tandfonline-
com.dbgw.lis.curtin.edu.au/doi/pdf/10.1080/07481189508252712?needAccess=true
Morris, A. T., Cabert-Quillen, C., Friebert, S. Carst, N. & Delahanty, D. L. (2016). The Indirect
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Murray, J. S. (2001). Social Support for School-Aged Siblings of Children With Cancer: A
Comparison between Parent and Sibling Perceptions. Journal of Pediatric Oncology Nursing.
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Conduct in Human Research. Accessed from
file:///C:/Users/Amber%20Rose/Downloads/national-statement-2018-updated%20(1).pdf
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Tan, T. X., Wang, Y. & Ruggerio, A. D. (2017). Childhood Adversity and Children’s Academic
Functioning: Roles of parenting Stress and Neighborhood Support. Journal of Child & Family
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com.dbgw.lis.curtin.edu.au/article/10.1007/s10826-017-0775-8
Wong, R. S. M., Ho, F. K. W., Wong, W. H. S., Tung, K. T. S., Chow, C. B., Rao, N., Chan, K.
L. & Ip, P. Parental Involvement in Primary School Education: It’s Relationship with
with school. Journal of Child & Family Studies. (2018). Vol. 27. Pp. 1544-1555. Accessed
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2.pdf
Worden, W. J., Davies, B. & McCown, D. (1999). Comparing Parent Loss with Sibling Loss.
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9/9/18
29/7/18 3/9/18 26/8/18
4. Prepare hypothetical 14/10/18
research: Research
2018 1.Idea for
literature review:
2. Idea approved:
Research to
3. Literature
Review
ethics and requirements 5. Hypothetical
Research:
Submitted to for under-taking research
commence - 25 Complete – A1 Document submitted
lecturer for review project, questions for
Peer-Reviewed Submitted for marking A2
research, methodology,
articles to be
analysis, action
reviewed
21/10/18
Full Project Title Does the Sudden, Unexpected or Ambiguous Death of a Sibling Affect
the Academic Performance of a Child in the Primary School Years?
RESEARCH PROJECT
BENEFITS
Assists teachers and parents in understanding what children are
going through when grieving the loss of a sibling and how they
can help them cope so that their academic performance is not
affected.
Can also assist schools and families in dealing with other forms
of loss
Helps students from falling behind in their schoolwork after the
loss of a sibling.
Long-term benefits are that a supported child is more likely to
have a productive and positive future.
BENEFICIARIES
SECTION 3: METHODOLOGY
Data Collection
1. Parent participants will be mailed a questionnaire to complete
Please indicate: in their home (see Appendix).
What participants will be Child participants will complete a questionnaire in their home (see
required to do as part of Appendix).
the project These will be returned in a stamped self-addressed envelope.
How long it will take, and 2. Parent participants will answer survey questions via
where and when this will researcher telephoning them (see Appendix).
occur 3. Parent participants will be part of an interview lasting
What data collection tools approximately 30 min per person.
will be used (please
provide copies of these Data collection tools are the questionnaires, surveys and interview
tools) questions.
How data will be recorded All data will be recorded in a written form.
(e.g. written, audio, video .
etc.)
If any other data will be
used (e.g. student records
etc.) and how these data
will be obtained
Please indicate: Risks are trauma - related to the questions or discussion about
If there are any risks the deceased.
involved in participation
If there are risks involved, Safeguards in place are the University Counsellor has agreed to
what safeguards are in be available to the participants if required.
place to respond to these
risks
Brigitte Carter SN Assignment 2 Dr K.
made publicly available in any way Principals will prepare a PD for all staff within their school.
you must provide an appropriate
consent form for participants.
Is there any additional information There is limited research available in the area of sibling loss in
you would like to provide in the primary school years. Much of the research to date on the
support of your application? loss of a child is related to adolescence and parents. Where there
is also limited research is in the area of how children in primary
school are impacted and the spill-over effects to their academic
performance. What is an issue for educators is not knowing if a
child is going through this experience – and more specifically
what are the impacts at a developmental stage. If communication
opportunities can be developed between parents and the school
the outcome can only be positive for the child and their academic
performance.
PRIMARY PARTIES
Supervisor
Name Martin King
Qualifications / Position Associate Professor
Address
Email
Telephone
Date
Signature
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Appendix 4
Information Letter Parents – Child and Individual Participation
Dear Parent/Carer
Does the sudden, unexpected or ambiguous death of a sibling impact the academic
performance of a child in the Primary School years?
My name is Brigitte Maree Carter and I am writing to you on behalf of Curtin University. I am conducting
a research project that aims to provide educators and significant others with insight and understanding
on how the sudden, unexpected or ambiguous death of a sibling can affect a child’s academic
performance in the Primary School years. The research aims to find out how parents and primary
schools support impacts the child’s academic performance and how they can subsequently work
together to support children, so they are able to function in a positive way in the academic arena after a
sibling dies. The research also aims to provide schools with guidelines on how student’s needs may be
addressed after a sibling dies. The research aims to promote a cohesion between parents, students
and schools so that adverse impacts on academic performance are minimalised. The project is being
conducted as part of a PhD at Curtin University.
I would like to invite you and your child to take part in the project. This is because gaining a deeper
understanding of the impact of sudden, unexpected or ambiguous sibling loss has on a child may assist
with monitoring and understanding the impact on academic performance. You and five other families
have volunteered to participate. As it is a longitudinal research study it will require your commitment in
three time blocks over a 12 month period.
.
Your child has also been provided with a letter from us that we encourage you to discuss with him/her.
If any member of a participant group decides to participate and then later changes their mind, they are
able to withdraw their participation at any time up until the end of the data collection period. Once the
data collection period is complete, data will be used for analysis and representation.
20
There will be no consequences relating to any decision by an individual regarding participation, other
than those already described in this letter. Decisions made will not affect the relationship with the
researcher or Curtin University.
What will happen to the information collected, and is privacy and confidentiality assured?
Information that identifies anyone will be removed from the data collected. The data is then stored
securely in the Curtin University secure vaults and can only be accessed by myself or the Curtin
University ethics committee. The data will be stored for a minimum period of 5 years, after which it will
be destroyed as per University privacy and ethics, codes and protocols.
The identity of participants and the school will not be disclosed at any time, except in circumstances
that require reporting under the Child Protection policy, or where the research team is legally required
to disclose that information.
Participant privacy, and the confidentiality of information disclosed by participants, is assured at all
other times.
The data will be used only for this project and will not be used in any extended or future research
without first obtaining the appropriate ethics requirements and explicit written consent from participants.
A summary of the research findings will be made available to the Curtin University Ethics Committee,
Curtin University Humanities Division and each of the participating families. You can expect this to be
available in April, 2020.
It is intended that the findings of this study will be examined by the University Ethics Committee and
Humanities Department. A summary of the research findings will also be made available upon
completion of the project. You can access this by contacting the Ethics Humanities Department and
expect it to become available in April, 2020.
Is this research approved? The research has been approved by Curtin University Human Research
Ethics Office; Ethics approval Number 1111 and has met the requirements of the Research Ethics of
Curtin University.
“How do I know that the people involved in this research have all the appropriate
documentation to be working with children?”
Under the Working with Children (Criminal Record Checking) Act 2004, people undertaking work (or
researchin Western Australia that involves contact with children must undergo a Working with Children
Check. The researcher must submit current WWCC documentation as part of Ethics application and
approval through Curtin University.
21
APPENDIX 5 Consent Form for Parents – Child and Individual Participation
Curtin University
Ethics Approval No. 1111
Consent Form
I have read and understood the information letter about the project or have had it
explained to me in language I understand.
I have taken up the invitation to ask any questions that I may have had and am
satisfied with the answers I received.
I have discussed with my child what it means to participate in this project. He/she has
explicitly indicated a willingness to take part, as indicated by his/her completion of the
child consent form.
I understand that both my child and I are free to withdraw that participation at any time
without affecting the family’s relationship with the researcher or University.
I give permission for the contribution that my child or I make to this research to be
published in a journal, provided that my child, other members of my family and I are
not identified in any way.
I understand that I can request a summary of findings after the research has been
completed.
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APPENDIX 6 Curtin University
Ethics Approval No. 1111 Information Sheet for Older Primary School Children
Dear Student
My name is Brigitte Carter and I am from Curtin University. I would like to invite you to take
part in a research project that I am doing. It is about how when a brother or sister dies it can
affect your academic performance and how parents and schools can best support children
who have had this happen to them.
I am asking for your help with the project because you have had a brother or sister who has
died and I need information from you to help with my research. I will be asking 6 other children
and families to become involved.
You can stop at any time, even if you have said yes. Just let your mum (or dad, or the person
who looks after you) know, and they will tell me.
You can withdraw from the research at any time during the data collection period.
What if I say something during the project that I don’t want anyone else to know?
I may have to tell someone like your parents if you tell me that you have been hurt by
someone lately. But for all other things you tell me, I won’t repeat them to anyone else.
If you do want to be a part of the project, please read the next page and write your name in
the space provide
This letter is for you to keep.
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APPENDIX 7
Curtin University
Ethics Approval No. 1111 Consent Form for Older Primary School Children (10-12)
I know that I don’t have to be involved in this project, but I would like to be.
I can withdraw from the research at any time in the data collection period.
I understand that I need to write my name in the space below, before I can be a
part of the project.
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APPENDIX 8 Curtin University Logo
Ethics Approval No. 1111 Information Sheet for Young Children (7-9)
Hello,
My name is Brigitte Carter. I have a project that you might like to help me with.
The project is about getting to know how I can help children with their
schoolwork after their brother or sister has died.
Would you like to help me for about 20-30 minute three times in the year?
I won’t tell anyone what you say while helping me with the project, unless I
need to tell someone like your parents.
Your parents, or the person who looks after you, has talked with you about
helping with the project.
If you would like to help with the project, please print your name, draw a circle
around the word YES.
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APPENDIX 9 Curtin University Logo
Ethics Approval No. 1111 Consent Form for Young Children
I know that I will be doing [insert what the child is being asked to do] as
part of the project.
I know that I need to print my name and draw a circle around the word YES
on this page before I can help with the project.
YES NO
I would like to help with I do not want to help
the project with the project
Dear Parent/Caregiver,
Thank you for agreeing to participate in the voluntary research study. The information you are
about to provide, as discussed in the consent letter, is bound by ethical and confidentiality
codes and practices. I appreciate and respect that some of the questions are sensitive, but I
ask that you take your time and answer them to assist in the research. If you require any
assistance, please do not hesitate to contact me on 0455 897123 between 7am and 7pm
WST
Parent/Caregiver Name: ________________________
Contact Telephone Number: ______________________
Please provide the information below using the child closest in age to the deceased who is in
the Primary School age range 7-12. If you do not have a child in this age range, please return
the questionnaire to the researcher ASAP.
Name of the child closest in age to the deceased _____________________
Please complete the questions below by writing in the space provided or by colouring the oval
shape with the correct response. Please choose only ONE oval.
Individual Characteristics
Q.1. What is your surname? _____________ Given Name _________________
Q.10. What was the birth placement of the deceased child (eg first born)?
7
First –
Second Third Fourth Fifth or
more 9
If fifth or more please state________________
Situational Characteristics
Q.1. What best describes the cause of death?
Accidental Homicide Ambiguous/Other
A
Medical Illness Suicide m
b
i
Q.2. Was the death of your child sudden or unexpected? g
u
Yes No o
A
m u
b s
Q.2. How long has it been since the death
i of your child? /
O
0-1 year V 1 -2 years g 2 -3 years 3 -4 years
u t
4 -5 years V More than 5 years h
o
u e
s r
/
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O
t
h
Environmental Variables
Please respond to all questions by shading the oval shape with your response.
Q. 1. Prior to the death of their sibling – did your child have any learning difficulties?
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q. 2. Prior to the death of their sibling – did your child display any emotional difficulties?
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q. 3. Since the death of their sibling my child is often anxious, angry or frustrated.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.4. Since the death of their sibling my child is often sad, depressed, withdrawn and teary.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q. 5. My child often has nightmares or can’t sleep because of the loss of their sibling.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q. 6. Since the death of their sibling, my child has developed behavior problems at home.
Strongly Agree Agree Undecided Disagree Strongly Disagree
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Q. 7. Since the death of their sibling my child has received professional counselling.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q. 8. I have discussed with my child and they understand the finality of death.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q. 9. My child has been involved in all or most of the processes (searches, funerals,
memorials etc) related to the death of their sibling.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.10. I have supported my child by helping them process and understand their feelings to do
with their grief.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.11. I have alone time with my child each week and allow them to talk openly about how they
are feeling.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.12. As a parent I have been able to support my child at home with their homework.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.13. As a parent I have been able to support my child with their grieving.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.14. As a parent I have been able to support my child with their schooling.
Strongly Agree Agree Undecided Disagree Strongly Disagree
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Q. 15. I have provided my child with support materials on sibling loss (eg books, websites).
Q. 16. Since the death of their sibling, my child has developed behavioral problems at school.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q. 17. Since the death of their sibling, my child has received counselling provided by the
school.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q. 18. Since the death of their sibling my child’s grades have got worse.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q. 19. Since the death of their sibling my child’s grades have improved.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.20. Since the death of their sibling my child has trouble concentrating in class.
Strongly Agree Agree Undecided Disagree Strongly Disagree
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Q. 21. My school has provided me with materials on sibling loss (eg books, websites).
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q. 22. Since the death of their sibling, the school has provided my child with tutoring or extra-
curricular schoolwork.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.25. My child’s school provides a positive, safe and productive classroom learning
environment.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.26. Since the death of their sibling my child has problems with their working memory.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.27. Since the death of their sibling my child has difficulties solving problems.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.28. Since the death of their sibling my child does not self- monitor their schoolwork.
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Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.29. Since the death of their sibling my child has become disinterested in their schoolwork.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.30. Since the death of their sibling my child has had trouble listening.
Strongly Agree Agree Undecided Disagree Strongly Disagree
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Appendix 11 Child Questionnaire
Thank you for agreeing to participate in this research study, I am very grateful to you and your
family. The information you are about to give me is very private and confidential which means
it can and will only be used by me for my research or given to a person involved in safety and
ethics - for your safety. I know that some of the questions may cause you to feel sad.
However, I ask that you take your time and answer them all to help with the research. If you
get upset and would like to speak to the University counsellor please have your parents
contact me on 0473038728.
You can stop any time you want to have a break. If the questions make you feel too sad then
you don’t have to answer them.
Your name________________________________
Your age ___________________
I would like you to answer the questions from since your sibling has died.
Q.1. My parents/carers support and understanding me.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.2. My parents help me learn that it is okay to have fun and grow without feeling guilty.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.3. My parents/carers give me alone time with them to talk openly about how I am feeling.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q.4. My parents/carers have provided me with support materials such as; books and CD’s
about grief.
Strongly Agree Agree Undecided Disagree Strongly Disagree
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Q. 7. I have felt sad, anxious, angry or frustrated.
Strongly Agree Agree Undecided Disagree Strongly Disagree
35
Q. 15. My school has given me books and resources to help me learn about grieving.
Strongly Agree Agree Undecided Disagree Strongly Disagree
Q. 2. Did your child’s grades get worse after the death of their sibling?
Yes No Unsure
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Q. 3. Have you arranged a meeting with the school to tell them about the loss of your child’s
sibling?
Yes No Unsure
Q. 4. Did your child return straight to school after the loss of their sibling?
Yes No Unsure
Q. 5. Has your child often been tired and lethargic from lack of sleep, since the loss of their
sibling?
Yes No Unsure
Q. 6. Does your child allow you to talk about the death of their sibling?
Yes No Unsure
Q. 7. Does your child understand the finality of death (as in their sibling will no longer be
physically present)?
Yes No Unsure
Q. 8. Did you inform the school about the death of your child and any subsequent absences?
Yes No Unsure
Q. 9. Did you discuss your child seeing a counsellor or other professional about their grief and
loss?
Yes No Unsure
Q. 10. Within your child’s school curriculum is there any program or class education which
addresses grief and loss?
Yes No Unsure
APPENDIX 13 Semi-structured Interview Questions
Q.1. Have you contacted the school to tell them about your child’s and family’s circumstances
regarding the death of your child’s sibling?
Why did you? – Please provide reasons
Why didn’t you? – Please provide reasons
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Q.2. Has the school offered support such as a mentoring or tutoring program to assist your
child in maintaining their academic progress before academic failure occurs?
How has this happened?
If not – what would you like to happen?
Q.3. Has the school provided your child with grief counselling - to teach them about the
normal signs of grief and trauma, so that your child can understand their own behavior?
If yes – how has this happened?
If not – what would you find beneficial for your child?
Q.4. Has your school connected with you and regularly checked on how your child is doing?
If yes-how?
If no – what would be beneficial?
Q.5. Has your school protected your child by having a contingency plan in place when they
are highly emotional or cry?
If yes – what do they do?
If no – what would best benefit your child?
Q. 6. In your opinion, what would you consider the most effective strategies to assist your
child and their academic performance since the death of their sibling? Please give details.
Q. 7. In your opinion, are there ways in which the school could have better supported your
child? Please give details.
Any other comments
__________________________________________________________
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